CALL ANNOUNCEMENT: obtain funding to conduct workshop on RESEARCH in Rare Diseases

The European Reference Network for Rare Neurological Diseases (ERN-RND) is pleased to invite you to the following webinar, as part of the Rare Disease Day 2021 campaign:
 
Topic: “Improving care for rare disease patients in Europe – Rare Disease Day 2021”
Date: Tuesday 23 February 2021 from 3:00pm to 4:00pm CET
Objectives of this webinar:
·         share different perspectives on care of rare disease patients in Europe
·         discuss opportunities and challenges linked to improving care of rare disease patients in Europe
Speakers:
 
– Holm Graessner, coordinator of the European Reference Network for Rare Neurological Diseases (ERN-RND) (and chair of the webinar)
– Donna Walsh, executive director of the European Federation of Neurological Associations (EFNA)
– Sophie Bernichtein, project manager of BRAIN-TEAM in France
– Tobias Mentzel, patient advocate at ELA Germany
– Maria Judit Molnar, Professor of Neurology and director of Semmelweis University’s Institute of Genomic Medicine and Rare Disorders, Hungary
 
Sign up here to attend the webinar.