{"id":10740,"date":"2026-10-20T15:14:47","date_gmt":"2026-10-20T13:14:47","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?post_type=events&#038;p=10740"},"modified":"2026-10-20T15:18:48","modified_gmt":"2026-10-20T13:18:48","slug":"webinar-european-initiatives-developing-organizational-frameworks-for-therapies-based-on-antisense-oligonucleotides-aso","status":"publish","type":"events","link":"https:\/\/ern-ithaca.eu\/de\/events-news\/upcoming-events\/webinar-european-initiatives-developing-organizational-frameworks-for-therapies-based-on-antisense-oligonucleotides-aso\/","title":{"rendered":"Webinar: European initiatives developing organizational frameworks for therapies based on antisense oligonucleotides (ASO)"},"content":{"rendered":"<p class=\"wp-block-paragraph\">This webinar will present European initiatives working to make antisense oligonucleotide (ASO) therapies available for patients with rare diseases. Experts from different countries will share how they are organizing the development, coordination, and access to these personalized treatments. The session will end with a clinical example showing how an individualized ASO therapy was developed and used in practice.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Sign up now: <a href=\"https:\/\/events.teams.microsoft.com\/event\/f1b16619-1fde-4c34-be42-9c7400854c32@2461c129-d44f-406d-a778-d1a3c4c1527c\">https:\/\/events.teams.microsoft.com\/event\/f1b16619-1fde-4c34-be42-9c7400854c32@2461c129-d44f-406d-a778-d1a3c4c1527c<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Date: 15 December 2026<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Time: 5:00 pm &#8211; 6:30 pm CET<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Chair: Pr. Laurence Faivre<\/li>\n\n\n\n<li>Germany \/ Netherlands\u00a0<a>\u2013\u00a0<\/a>N1C and 1M1M initiatives (Holm\u00a0Graessner)<\/li>\n\n\n\n<li>Vereinigtes K\u00f6nigreich\u00a0<a>\u2013<\/a>\u00a0The Rare Therapies Launchpad: a pilot program for individualized medicines in the UK (Dan O\u2019Connor)<\/li>\n\n\n\n<li>Spain \u2013 The Spanish Network for Personalized RNA Therapies (Miguel \u00c1ngel Rubio P\u00e9rez)<\/li>\n\n\n\n<li>France \u2013 The AnDDI-ASO network (Alban Ziegler)<\/li>\n\n\n\n<li>We would end with a clinical example illustrating the development of an ASO therapy:Antisense oligonucleotide treatment in a preterm infant with early-onset SCN2A developmental and epileptic encephalopathy (Matias Wagner)<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>","protected":false},"featured_media":0,"template":"","categories":[],"tags":[],"class_list":["post-10740","events","type-events","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Webinar: European initiatives developing organizational frameworks for therapies based on antisense oligonucleotides (ASO) - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"noindex, follow\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Webinar: European initiatives developing organizational frameworks for therapies based on antisense oligonucleotides (ASO) - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"This webinar will present European initiatives working to make antisense oligonucleotide (ASO) therapies available for patients with rare diseases. Experts from different countries will share how they are organizing the development, coordination, and access to these personalized treatments. The session will end with a clinical example showing how an individualized ASO therapy was developed and [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/ern-ithaca.eu\/de\/events-news\/upcoming-events\/webinar-european-initiatives-developing-organizational-frameworks-for-therapies-based-on-antisense-oligonucleotides-aso\/\" \/>\n<meta property=\"og:site_name\" content=\"ERN ITHACA\" \/>\n<meta property=\"article:modified_time\" content=\"2026-10-20T13:18:48+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@ERNIthaca\" \/>\n<meta name=\"twitter:label1\" content=\"Gesch\u00e4tzte Lesezeit\" \/>\n\t<meta name=\"twitter:data1\" content=\"1\u00a0Minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/upcoming-events\\\/webinar-european-initiatives-developing-organizational-frameworks-for-therapies-based-on-antisense-oligonucleotides-aso\\\/\",\"url\":\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/upcoming-events\\\/webinar-european-initiatives-developing-organizational-frameworks-for-therapies-based-on-antisense-oligonucleotides-aso\\\/\",\"name\":\"Webinar: European initiatives developing organizational frameworks for therapies based on antisense oligonucleotides (ASO) - ERN ITHACA\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#website\"},\"datePublished\":\"2026-10-20T13:14:47+00:00\",\"dateModified\":\"2026-10-20T13:18:48+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/upcoming-events\\\/webinar-european-initiatives-developing-organizational-frameworks-for-therapies-based-on-antisense-oligonucleotides-aso\\\/#breadcrumb\"},\"inLanguage\":\"de\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/upcoming-events\\\/webinar-european-initiatives-developing-organizational-frameworks-for-therapies-based-on-antisense-oligonucleotides-aso\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/upcoming-events\\\/webinar-european-initiatives-developing-organizational-frameworks-for-therapies-based-on-antisense-oligonucleotides-aso\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/ern-ithaca.eu\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"events > upcoming events\",\"item\":\"https:\\\/\\\/ern-ithaca.eu\\\/events\\\/upcoming-events\\\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Webinar: European initiatives developing organizational frameworks for therapies based on antisense oligonucleotides (ASO)\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#website\",\"url\":\"https:\\\/\\\/ern-ithaca.eu\\\/\",\"name\":\"ERN ITHACA\",\"description\":\"WELCOME TO ERN-ITHACA WEBSITE!\",\"publisher\":{\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/ern-ithaca.eu\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"de\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#organization\",\"name\":\"ERN-ITHACA\",\"url\":\"https:\\\/\\\/ern-ithaca.eu\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"de\",\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/ern-ithaca.eu\\\/wp-content\\\/uploads\\\/2022\\\/02\\\/Logo-ERN-ITHACA.jpg\",\"contentUrl\":\"https:\\\/\\\/ern-ithaca.eu\\\/wp-content\\\/uploads\\\/2022\\\/02\\\/Logo-ERN-ITHACA.jpg\",\"width\":454,\"height\":172,\"caption\":\"ERN-ITHACA\"},\"image\":{\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/x.com\\\/ERNIthaca\",\"https:\\\/\\\/www.linkedin.com\\\/company\\\/ithaca-european-reference-network-on-congenital-malformations-ans-rare-intellectual-disability\\\/?viewAsMember=true\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Webinar: European initiatives developing organizational frameworks for therapies based on antisense oligonucleotides (ASO) - ERN ITHACA","robots":{"index":"noindex","follow":"follow"},"og_locale":"de_DE","og_type":"article","og_title":"Webinar: European initiatives developing organizational frameworks for therapies based on antisense oligonucleotides (ASO) - ERN ITHACA","og_description":"This webinar will present European initiatives working to make antisense oligonucleotide (ASO) therapies available for patients with rare diseases. 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