{"id":7282,"date":"2025-03-18T13:43:46","date_gmt":"2025-03-18T12:43:46","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?post_type=events&#038;p=7282"},"modified":"2025-03-18T13:43:47","modified_gmt":"2025-03-18T12:43:47","slug":"ern-ithaca-webinar-with-the-patient-in-the-middle-focus-on-the-whole-family-a-norwegian-model","status":"publish","type":"events","link":"https:\/\/ern-ithaca.eu\/de\/events-news\/upcoming-events\/ern-ithaca-webinar-with-the-patient-in-the-middle-focus-on-the-whole-family-a-norwegian-model\/","title":{"rendered":"ERN-ITHACA Webinar &#8220;With the patient in the middle &#8211; focus on the whole family ; A Norwegian model&#8221;"},"content":{"rendered":"<p class=\"wp-block-paragraph\">In order to care for the health and wellbeing of a person with a rare disorder, we also need to focus on wellbeing for those around. In Norway, some of the Centers for Rare Disorders also have focus on the family members such as parents, siblings and grandparents and this webinar will concentrate on them.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Date<\/strong>: Tuesday, 8 April 2025<br><strong>Zeit<\/strong>: 17:00 &#8211; 18:30 (CET)<\/p>\n\n\n\n<div style=\"height:35px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>PROGRAM:<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Begr\u00fc\u00dfung und Einf\u00fchrung<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Speaker\u00a0: Heidi E. Nag, Special Educational Advisor, PhD<\/li>\n\n\n\n<li>From: Frambu Resource Centre for Rare Disorders, Norway<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>A presentation of Frambu and the Norwegian model<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Speaker\u00a0: Kristian Kristoffersen, director at Frambu<\/li>\n\n\n\n<li>From: Frambu Resource Centre for Rare Disorders, Norway<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Parents and caring for the caregivers<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Speaker\u00a0: Torun Vatne,\u00a0Doctor of Psychology<\/li>\n\n\n\n<li>From:\u00a0\u00a0Frambu Resource Centre for Rare Disorders, Norway<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Siblings<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Speaker\u00a0: Krister W. Fjermestad, Doctor of Psychology<\/li>\n\n\n\n<li>From: Frambu Resource Centre for Rare Disorders, Norway<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Grandparents \u2013 a double grief<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Speaker\u00a0:\u00a0Tonje Elgs\u00e5s, Psychologist<\/li>\n\n\n\n<li>From: Frambu Resource Centre for Rare Disorders, Norway<\/li>\n<\/ul>\n\n\n\n<div style=\"height:35px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><a href=\"https:\/\/events.teams.microsoft.com\/event\/a7be02b2-262b-458d-9c80-fd5bb0439a51@2461c129-d44f-406d-a778-d1a3c4c1527c\">HIER <\/a> to register\u00a0<\/strong><\/p>","protected":false},"featured_media":0,"template":"","categories":[],"tags":[],"class_list":["post-7282","events","type-events","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ERN-ITHACA Webinar &quot;With the patient in the middle - focus on the whole family ; A Norwegian model&quot; - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"noindex, follow\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ERN-ITHACA Webinar &quot;With the patient in the middle - focus on the whole family ; A Norwegian model&quot; - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"In order to care for the health and wellbeing of a person with a rare disorder, we also need to focus on wellbeing for those around. 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