{"id":7349,"date":"2025-04-01T10:33:10","date_gmt":"2025-04-01T08:33:10","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?post_type=events&#038;p=7349"},"modified":"2025-04-07T11:54:28","modified_gmt":"2025-04-07T09:54:28","slug":"ern-ithaca-webinar-navigating-angelman-syndrome-in-clinical-practice","status":"publish","type":"events","link":"https:\/\/ern-ithaca.eu\/de\/events-news\/upcoming-events\/ern-ithaca-webinar-navigating-angelman-syndrome-in-clinical-practice\/","title":{"rendered":"ERN-ITHACA Webinar &#8220;Navigating Angelman syndrome in clinical practice&#8221;\u00a0"},"content":{"rendered":"<p class=\"wp-block-paragraph\">This webinar is the second of a webinar series dedicated to Angelman syndrome, a neurogenetic disorder. In this session we\u2019ll focus on how Angelman syndrome presents in clinical practice.&nbsp; Join us for an insightful webinar exploring how different genotypes in Angelman Syndrome influence development and medical outcomes. Experts Dr. Karen Bindels-de Heus and Dr. Ana Roche will discuss key topics, including seizures, movement disorders, behavioral concerns, sleep disturbances, and more.&nbsp;&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Date<\/strong>: Tuesday 13 May, 17:00 &#8211; 18:30 (CET time)<\/p>\n\n\n\n<div style=\"height:37px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">We&#8217;ll be joined by distinguished experts in the field: <strong>Dr. Ana Roche (MD, Phd)<\/strong>, Pediatric neurologist &amp; Angelman syndrome Clinic coordinator, Parc Tauli, Barcelona, and <strong>Dr. Karen Bindel-de Heus (MD, Phd)<\/strong>, Pediatrician, Erasmus MC, Rotterdam.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Our expert speakers will provide insights on the following topics:<br><strong>Genotype-phenotype differences in Angelman Syndrome and their impact on development and symptom severity<\/strong>;<br><strong>Medical conditions related to Angelman Syndrome <\/strong>(Seizures; Movement disorders; Anxiety and behavioral concerns; Sleep disturbances; Gastrointestinal issues; Hyperphagia, growth &amp; puberty).<\/p>\n\n\n\n<div style=\"height:37px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/events.teams.microsoft.com\/event\/6ada80bc-997b-49b0-b196-835ee16db8f5@2461c129-d44f-406d-a778-d1a3c4c1527c\">HIER<\/a> to register<\/p>","protected":false},"featured_media":0,"template":"","categories":[],"tags":[],"class_list":["post-7349","events","type-events","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ERN-ITHACA Webinar &quot;Navigating Angelman syndrome in clinical practice&quot;\u00a0 - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"noindex, follow\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ERN-ITHACA Webinar &quot;Navigating Angelman syndrome in clinical practice&quot;\u00a0 - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"This webinar is the second of a webinar series dedicated to Angelman syndrome, a neurogenetic disorder. In this session we\u2019ll focus on how Angelman syndrome presents in clinical practice.&nbsp; Join us for an insightful webinar exploring how different genotypes in Angelman Syndrome influence development and medical outcomes. Experts Dr. Karen Bindels-de Heus and Dr. Ana [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/ern-ithaca.eu\/de\/events-news\/upcoming-events\/ern-ithaca-webinar-navigating-angelman-syndrome-in-clinical-practice\/\" \/>\n<meta property=\"og:site_name\" content=\"ERN ITHACA\" \/>\n<meta property=\"article:modified_time\" content=\"2025-04-07T09:54:28+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@ERNIthaca\" \/>\n<meta name=\"twitter:label1\" content=\"Gesch\u00e4tzte Lesezeit\" \/>\n\t<meta name=\"twitter:data1\" content=\"1\u00a0Minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/upcoming-events\\\/ern-ithaca-webinar-navigating-angelman-syndrome-in-clinical-practice\\\/\",\"url\":\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/upcoming-events\\\/ern-ithaca-webinar-navigating-angelman-syndrome-in-clinical-practice\\\/\",\"name\":\"ERN-ITHACA Webinar \\\"Navigating Angelman syndrome in clinical practice\\\"\u00a0 - ERN ITHACA\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#website\"},\"datePublished\":\"2025-04-01T08:33:10+00:00\",\"dateModified\":\"2025-04-07T09:54:28+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/upcoming-events\\\/ern-ithaca-webinar-navigating-angelman-syndrome-in-clinical-practice\\\/#breadcrumb\"},\"inLanguage\":\"de\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/upcoming-events\\\/ern-ithaca-webinar-navigating-angelman-syndrome-in-clinical-practice\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/upcoming-events\\\/ern-ithaca-webinar-navigating-angelman-syndrome-in-clinical-practice\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/ern-ithaca.eu\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"events > upcoming events\",\"item\":\"https:\\\/\\\/ern-ithaca.eu\\\/events\\\/upcoming-events\\\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"ERN-ITHACA Webinar &#8220;Navigating Angelman syndrome in clinical practice&#8221;\u00a0\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#website\",\"url\":\"https:\\\/\\\/ern-ithaca.eu\\\/\",\"name\":\"ERN ITHACA\",\"description\":\"WELCOME TO ERN-ITHACA WEBSITE!\",\"publisher\":{\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/ern-ithaca.eu\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"de\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#organization\",\"name\":\"ERN-ITHACA\",\"url\":\"https:\\\/\\\/ern-ithaca.eu\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"de\",\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/ern-ithaca.eu\\\/wp-content\\\/uploads\\\/2022\\\/02\\\/Logo-ERN-ITHACA.jpg\",\"contentUrl\":\"https:\\\/\\\/ern-ithaca.eu\\\/wp-content\\\/uploads\\\/2022\\\/02\\\/Logo-ERN-ITHACA.jpg\",\"width\":454,\"height\":172,\"caption\":\"ERN-ITHACA\"},\"image\":{\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/x.com\\\/ERNIthaca\",\"https:\\\/\\\/www.linkedin.com\\\/company\\\/ithaca-european-reference-network-on-congenital-malformations-ans-rare-intellectual-disability\\\/?viewAsMember=true\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"ERN-ITHACA Webinar \"Navigating Angelman syndrome in clinical practice\"\u00a0 - ERN ITHACA","robots":{"index":"noindex","follow":"follow"},"og_locale":"de_DE","og_type":"article","og_title":"ERN-ITHACA Webinar \"Navigating Angelman syndrome in clinical practice\"\u00a0 - ERN ITHACA","og_description":"This webinar is the second of a webinar series dedicated to Angelman syndrome, a neurogenetic disorder. 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