{"id":7165,"date":"2025-02-24T12:59:19","date_gmt":"2025-02-24T11:59:19","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?post_type=news&#038;p=7165"},"modified":"2025-02-24T12:59:19","modified_gmt":"2025-02-24T11:59:19","slug":"ec-publication-of-a-booklet-on-erns-success-stories","status":"publish","type":"news","link":"https:\/\/ern-ithaca.eu\/de\/events-news\/news\/ec-publication-of-a-booklet-on-erns-success-stories\/","title":{"rendered":"EC publication of a booklet on ERNs success stories"},"content":{"rendered":"<p class=\"wp-block-paragraph\">The European Commission has just published a <strong>special ERN booklet<\/strong> to promote European Reference Networks. This document provides an overview of the 24 networks and showcase their achievements into the rare diseases field.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">For its writing, each ERN was asked to share three <strong>success stories<\/strong> to show how our networks concretly and conclusively impact patient care. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The overall outlook emerging from reading this booklet is the clear EU-added value that we<br>provide to help patients with rare diseases and their families and the effort that the Commission is making to increase the awareness of the European Reference Networks\u2019 activities.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">You can read the booklet <a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2025\/02\/EW-01-25-015-EN-WEB.pdf\">HIER<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>","protected":false},"excerpt":{"rendered":"<p>The European Commission has just published a special ERN booklet to promote European Reference Networks. This document provides an overview of the 24 networks and showcase their achievements into the rare diseases field. For its writing, each ERN was asked to share three success stories to show how our networks concretly and conclusively impact patient [&hellip;]<\/p>\n","protected":false},"featured_media":0,"template":"","categories":[],"tags":[],"class_list":["post-7165","news","type-news","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>EC publication of a booklet on ERNs success stories - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ern-ithaca.eu\/de\/events-news\/news\/ec-publication-of-a-booklet-on-erns-success-stories\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"EC publication of a booklet on ERNs success stories - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"The European Commission has just published a special ERN booklet to promote European Reference Networks. This document provides an overview of the 24 networks and showcase their achievements into the rare diseases field. For its writing, each ERN was asked to share three success stories to show how our networks concretly and conclusively impact patient [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/ern-ithaca.eu\/de\/events-news\/news\/ec-publication-of-a-booklet-on-erns-success-stories\/\" \/>\n<meta property=\"og:site_name\" content=\"ERN ITHACA\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@ERNIthaca\" \/>\n<meta name=\"twitter:label1\" content=\"Gesch\u00e4tzte Lesezeit\" \/>\n\t<meta name=\"twitter:data1\" content=\"1\u00a0Minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/news\\\/ec-publication-of-a-booklet-on-erns-success-stories\\\/\",\"url\":\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/news\\\/ec-publication-of-a-booklet-on-erns-success-stories\\\/\",\"name\":\"EC publication of a booklet on ERNs success stories - ERN ITHACA\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#website\"},\"datePublished\":\"2025-02-24T11:59:19+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/news\\\/ec-publication-of-a-booklet-on-erns-success-stories\\\/#breadcrumb\"},\"inLanguage\":\"de\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/news\\\/ec-publication-of-a-booklet-on-erns-success-stories\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/news\\\/ec-publication-of-a-booklet-on-erns-success-stories\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/ern-ithaca.eu\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"NEWS & EVENTS > NEWS\",\"item\":\"https:\\\/\\\/ern-ithaca.eu\\\/events-news\\\/news\\\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"EC publication of a booklet on ERNs success stories\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#website\",\"url\":\"https:\\\/\\\/ern-ithaca.eu\\\/\",\"name\":\"ERN ITHACA\",\"description\":\"WELCOME TO ERN-ITHACA WEBSITE!\",\"publisher\":{\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/ern-ithaca.eu\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"de\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#organization\",\"name\":\"ERN-ITHACA\",\"url\":\"https:\\\/\\\/ern-ithaca.eu\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"de\",\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/ern-ithaca.eu\\\/wp-content\\\/uploads\\\/2022\\\/02\\\/Logo-ERN-ITHACA.jpg\",\"contentUrl\":\"https:\\\/\\\/ern-ithaca.eu\\\/wp-content\\\/uploads\\\/2022\\\/02\\\/Logo-ERN-ITHACA.jpg\",\"width\":454,\"height\":172,\"caption\":\"ERN-ITHACA\"},\"image\":{\"@id\":\"https:\\\/\\\/ern-ithaca.eu\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/x.com\\\/ERNIthaca\",\"https:\\\/\\\/www.linkedin.com\\\/company\\\/ithaca-european-reference-network-on-congenital-malformations-ans-rare-intellectual-disability\\\/?viewAsMember=true\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"EC publication of a booklet on ERNs success stories - ERN ITHACA","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/ern-ithaca.eu\/de\/events-news\/news\/ec-publication-of-a-booklet-on-erns-success-stories\/","og_locale":"de_DE","og_type":"article","og_title":"EC publication of a booklet on ERNs success stories - ERN ITHACA","og_description":"The European Commission has just published a special ERN booklet to promote European Reference Networks. This document provides an overview of the 24 networks and showcase their achievements into the rare diseases field. For its writing, each ERN was asked to share three success stories to show how our networks concretly and conclusively impact patient [&hellip;]","og_url":"https:\/\/ern-ithaca.eu\/de\/events-news\/news\/ec-publication-of-a-booklet-on-erns-success-stories\/","og_site_name":"ERN ITHACA","twitter_card":"summary_large_image","twitter_site":"@ERNIthaca","twitter_misc":{"Gesch\u00e4tzte Lesezeit":"1\u00a0Minute"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/ern-ithaca.eu\/events-news\/news\/ec-publication-of-a-booklet-on-erns-success-stories\/","url":"https:\/\/ern-ithaca.eu\/events-news\/news\/ec-publication-of-a-booklet-on-erns-success-stories\/","name":"EC publication of a booklet on ERNs success stories - ERN ITHACA","isPartOf":{"@id":"https:\/\/ern-ithaca.eu\/#website"},"datePublished":"2025-02-24T11:59:19+00:00","breadcrumb":{"@id":"https:\/\/ern-ithaca.eu\/events-news\/news\/ec-publication-of-a-booklet-on-erns-success-stories\/#breadcrumb"},"inLanguage":"de","potentialAction":[{"@type":"ReadAction","target":["https:\/\/ern-ithaca.eu\/events-news\/news\/ec-publication-of-a-booklet-on-erns-success-stories\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/ern-ithaca.eu\/events-news\/news\/ec-publication-of-a-booklet-on-erns-success-stories\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/ern-ithaca.eu\/"},{"@type":"ListItem","position":2,"name":"NEWS & EVENTS > NEWS","item":"https:\/\/ern-ithaca.eu\/events-news\/news\/"},{"@type":"ListItem","position":3,"name":"EC publication of a booklet on ERNs success stories"}]},{"@type":"WebSite","@id":"https:\/\/ern-ithaca.eu\/#website","url":"https:\/\/ern-ithaca.eu\/","name":"ERN ITHACA","description":"WELCOME TO ERN-ITHACA WEBSITE!","publisher":{"@id":"https:\/\/ern-ithaca.eu\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/ern-ithaca.eu\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"de"},{"@type":"Organization","@id":"https:\/\/ern-ithaca.eu\/#organization","name":"ERN-ITHACA","url":"https:\/\/ern-ithaca.eu\/","logo":{"@type":"ImageObject","inLanguage":"de","@id":"https:\/\/ern-ithaca.eu\/#\/schema\/logo\/image\/","url":"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Logo-ERN-ITHACA.jpg","contentUrl":"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Logo-ERN-ITHACA.jpg","width":454,"height":172,"caption":"ERN-ITHACA"},"image":{"@id":"https:\/\/ern-ithaca.eu\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/x.com\/ERNIthaca","https:\/\/www.linkedin.com\/company\/ithaca-european-reference-network-on-congenital-malformations-ans-rare-intellectual-disability\/?viewAsMember=true"]}]}},"_links":{"self":[{"href":"https:\/\/ern-ithaca.eu\/de\/wp-json\/wp\/v2\/news\/7165","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ern-ithaca.eu\/de\/wp-json\/wp\/v2\/news"}],"about":[{"href":"https:\/\/ern-ithaca.eu\/de\/wp-json\/wp\/v2\/types\/news"}],"wp:attachment":[{"href":"https:\/\/ern-ithaca.eu\/de\/wp-json\/wp\/v2\/media?parent=7165"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ern-ithaca.eu\/de\/wp-json\/wp\/v2\/categories?post=7165"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ern-ithaca.eu\/de\/wp-json\/wp\/v2\/tags?post=7165"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}