{"id":9119,"date":"2026-02-27T15:18:49","date_gmt":"2026-02-27T14:18:49","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?post_type=news&#038;p=9119"},"modified":"2026-02-27T15:18:49","modified_gmt":"2026-02-27T14:18:49","slug":"international-symposium-rare-diseases-day-2026-your-hardest-times-will-become-your-strength-move-forward-and-look-ahead","status":"publish","type":"news","link":"https:\/\/ern-ithaca.eu\/de\/events-news\/news\/international-symposium-rare-diseases-day-2026-your-hardest-times-will-become-your-strength-move-forward-and-look-ahead\/","title":{"rendered":"International Symposium Rare Diseases Day 2026 &#8220;Your hardest times will become your strength &#8211; Move forward and look ahead!&#8221;"},"content":{"rendered":"<p class=\"wp-block-paragraph\">We are delighted to announce the <strong>Second Global and Sixth International Symposium Rare Disease Day 2026<\/strong>, held in recognition of Rare Disease Day and Sleep Awareness Month. The event is organized by the Regional Specialized Children\u2019s Hospital in Olsztyn and the University of Warmia and Mazury in Olsztyn, under the auspices of EURORDIS (rarediseaseday.org) and the European Sleep Research Society (ESRS).<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The Symposium will focus on <strong>rare neurodevelopmental and neurometabolic disorders, particularly those associated with brain malformations, paroxysmal events, movement disorders, and abnormalities of sleep patterns<\/strong>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Invited speakers include representatives of centers affiliated with the European Reference Networks \u2014 ERN-EpiCare, ERN-RND, and ERN-ITHACA \u2014 as well as members of the International Consortium for Research on Alternating Hemiplegia of Childhood (IAHCRC).<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The program will also feature patient representatives and families affected by alternating hemiplegia of childhood, Dravet syndrome, and adrenomyeloneuropathy, bringing valuable perspectives to the scientific and clinical discussions.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">All interested professionals, researchers, clinicians, patients, and invited to attend.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Date<\/strong>: 14 March 2026, 8:00 a.m. \u2013 7:30 p.m. CET <br><strong>Venue<\/strong>: online<br><strong>Application<\/strong>: via e-mail to chorobyrzadkiewssd@gmail.com by 13 March 2026 (in the e-mail, please provide your name and surname, e-mail address, academic degree, license number in the case of doctors) <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">To see the meeting&#8217;s program and speakers please consult this <a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2026\/02\/RDD-Olsztyn-2026-final-program.pdf\">Brosch\u00fcre<\/a>.\u00a0<\/p>","protected":false},"excerpt":{"rendered":"<p>We are delighted to announce the Second Global and Sixth International Symposium Rare Disease Day 2026, held in recognition of Rare Disease Day and Sleep Awareness Month. The event is organized by the Regional Specialized Children\u2019s Hospital in Olsztyn and the University of Warmia and Mazury in Olsztyn, under the auspices of EURORDIS (rarediseaseday.org) and [&hellip;]<\/p>\n","protected":false},"featured_media":0,"template":"","categories":[],"tags":[],"class_list":["post-9119","news","type-news","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>International Symposium Rare Diseases Day 2026 &quot;Your hardest times will become your strength - Move forward and look ahead!&quot; - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ern-ithaca.eu\/de\/events-news\/news\/international-symposium-rare-diseases-day-2026-your-hardest-times-will-become-your-strength-move-forward-and-look-ahead\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"International Symposium Rare Diseases Day 2026 &quot;Your hardest times will become your strength - Move forward and look ahead!&quot; - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"We are delighted to announce the Second Global and Sixth International Symposium Rare Disease Day 2026, held in recognition of Rare Disease Day and Sleep Awareness Month. 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