{"id":4319,"date":"2024-02-04T17:53:23","date_gmt":"2024-02-04T16:53:23","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?post_type=events&#038;p=4319"},"modified":"2024-02-05T12:05:21","modified_gmt":"2024-02-05T11:05:21","slug":"european-conference-on-rare-diseases","status":"publish","type":"events","link":"https:\/\/ern-ithaca.eu\/es\/events-news\/upcoming-events\/european-conference-on-rare-diseases\/","title":{"rendered":"European Conference on Rare Diseases"},"content":{"rendered":"<p class=\"wp-block-paragraph\">The ECRD is the&nbsp;<strong>largest, patient-led, rare disease policy-shaping event&nbsp;<\/strong>held in Europe.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">By bringing together&nbsp;people with&nbsp;rare diseases&nbsp;and patient advocates, policy makers, healthcare industry representatives, clinicians, regulators and Member State representatives, EURORDIS harnesses<strong>&nbsp;the power of this extensive network<\/strong>&nbsp;to<strong>&nbsp;<\/strong>shape goal-driven&nbsp;rare disease policies of the future.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>With over 1000 participants<\/strong>, the Conference is an unrivalled opportunity to&nbsp;<strong>network and exchange invaluable&nbsp;<\/strong>insights within the rare disease community.&nbsp;Through&nbsp;collaborative&nbsp;efforts,&nbsp;these discussions culminate&nbsp;in&nbsp;<strong>clear policy recommendations<\/strong>&nbsp;that can&nbsp;influence both EU and national policies.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Get ready for the next ECRD, a fully hybrid conference taking place on&nbsp;<strong>15 &amp; 16 May 2024<\/strong>&nbsp;online and at The Square in Brussels.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.rare-diseases.eu\/register\/\"><strong>Registration is now open<\/strong><\/a>&nbsp;with a limited number of&nbsp;<strong>300 places available to join us in person<\/strong>&nbsp;y&nbsp;<strong>early-bird fees available until 2 February!&nbsp;<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">For more info, consult the ECRD website: <a href=\"https:\/\/www.rare-diseases.eu\/\">European Conference on Rare Diseases &#8211; ECRD2024 (rare-diseases.eu)<\/a><\/p>","protected":false},"featured_media":0,"template":"","categories":[],"tags":[],"class_list":["post-4319","events","type-events","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>European Conference on Rare Diseases - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"noindex, follow\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"European Conference on Rare Diseases - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"The ECRD is the&nbsp;largest, patient-led, rare disease policy-shaping event&nbsp;held in Europe. 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