{"id":3319,"date":"2023-10-25T16:59:20","date_gmt":"2023-10-25T14:59:20","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?post_type=news&#038;p=3319"},"modified":"2023-11-14T19:06:23","modified_gmt":"2023-11-14T18:06:23","slug":"ern-ithaca-webinar-10-incidental-and-secondary-findings-from-exome-genome-sequencing-the-views-of-various-european-countries-and-eshg","status":"publish","type":"news","link":"https:\/\/ern-ithaca.eu\/es\/events-news\/news\/ern-ithaca-webinar-10-incidental-and-secondary-findings-from-exome-genome-sequencing-the-views-of-various-european-countries-and-eshg\/","title":{"rendered":"ERN-ITHACA webinar 10 &#8220;Incidental and secondary findings from exome\/genome sequencing : The views of various European countries and ESHG&#8221;"},"content":{"rendered":"<p class=\"wp-block-paragraph\">The issue of&nbsp;<strong>incidental data<\/strong>, which has always existed in genetics, is becoming exponential with the advent of genomic medicine. The issue of <strong>secondary data<\/strong>, involving an active search for variants in a list of so-called actionable genes, is very popular in the USA, whereas Europeans are urging caution.&nbsp;<br>In this webinar, we would like to take a look at the evolution of recommendations made by certain European countries, as well as those of the ESHG.<\/p>\n\n\n\n<div style=\"height:52px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Program:<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Bienvenida e introducci\u00f3n&nbsp;<\/strong><br>Speaker : Laurence Faivre<br>From : CHU Dijon-Bourgogne, Dijon, France<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>ESHG recommendations on Opportunistic genomic screening<\/strong><br>Speaker : Dr Francesca Forzano<br>From : King&#8217;s College, London, UK<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Secondary findings in exome sequencing. Experience in a tertiary public hospital in Spain<\/strong><br>Speaker : Dr Marta Codina Sol\u00e0 and Dr Anna Abuli<br>From : Hospital Universitari Vall d\u2019Hebron, Barcelona, Spain<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Management of unexpected findings in the NHS England Genomic Medicine Service<\/strong><br>Speaker : Rachael Mein\u00a0<br>From : NHS England Genomics Unit Senior Laboratory Advisor (Rare Disease), UK\u00a0<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Studies for exploring the expectations of patients\/families regarding additional findings from exome sequencing in France<\/strong><br>Speaker : Laurence Faivre<br>From : CHU Dijon-Bourgogne, Dijon, France<\/p>\n\n\n\n<div style=\"height:52px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Fecha<\/strong>: 28 November, 05:00 &#8211; 06:30 PM, French time<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Formulario de inscripci\u00f3n: <a href=\"https:\/\/forms.office.com\/e\/cUU3JXMYTt\">https:\/\/forms.office.com\/e\/cUU3JXMYTt<\/a><\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Link to connect:<\/strong> <a href=\"https:\/\/teams.microsoft.com\/dl\/launcher\/launcher.html?url=%2F_%23%2Fl%2Fmeetup-join%2F19%3Ameeting_OGVmMmY5NTMtODAxNy00OTdhLTliMDEtYzY5YjRlNDkzOTFk%40thread.v2%2F0%3Fcontext%3D%257b%2522Tid%2522%253a%25222461c129-d44f-406d-a778-d1a3c4c1527c%2522%252c%2522Oid%2522%253a%25223fe3bbab-4860-4b0b-bdc7-6ebc8a2f8f7b%2522%257d%26anon%3Dtrue&amp;type=meetup-join&amp;deeplinkId=984a5489-7c91-475e-b755-2e39249c6a09&amp;directDl=true&amp;msLaunch=true&amp;enableMobilePage=true&amp;suppressPrompt=true\">Rejoindre la conversation (microsoft.com)<\/a><a href=\"https:\/\/teams.microsoft.com\/dl\/launcher\/launcher.html?url=%2F_%23%2Fl%2Fmeetup-join%2F19%3Ameeting_NTcxZTU5YTItZTk1MS00MWEwLThiOGYtODYwMTVkYzcyODA0%40thread.v2%2F0%3Fcontext%3D%257b%2522Tid%2522%253a%25222461c129-d44f-406d-a778-d1a3c4c1527c%2522%252c%2522Oid%2522%253a%25223fe3bbab-4860-4b0b-bdc7-6ebc8a2f8f7b%2522%257d%26anon%3Dtrue&amp;type=meetup-join&amp;deeplinkId=86857e49-9900-446b-9836-b80578ba5a9e&amp;directDl=true&amp;msLaunch=true&amp;enableMobilePage=true&amp;suppressPrompt=true\">Rejoindre la conversation (microsoft.com)<\/a><a href=\"https:\/\/teams.microsoft.com\/dl\/launcher\/launcher.html?url=%2F_%23%2Fl%2Fmeetup-join%2F19%3Ameeting_OGVmMmY5NTMtODAxNy00OTdhLTliMDEtYzY5YjRlNDkzOTFk%40thread.v2%2F0%3Fcontext%3D%257b%2522Tid%2522%253a%25222461c129-d44f-406d-a778-d1a3c4c1527c%2522%252c%2522Oid%2522%253a%25223fe3bbab-4860-4b0b-bdc7-6ebc8a2f8f7b%2522%257d%26anon%3Dtrue&amp;type=meetup-join&amp;deeplinkId=984a5489-7c91-475e-b755-2e39249c6a09&amp;directDl=true&amp;msLaunch=true&amp;enableMobilePage=true&amp;suppressPrompt=true\"><\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>The issue of&nbsp;incidental data, which has always existed in genetics, is becoming exponential with the advent of genomic medicine. The issue of secondary data, involving an active search for variants in a list of so-called actionable genes, is very popular in the USA, whereas Europeans are urging caution.&nbsp;In this webinar, we would like to take [&hellip;]<\/p>\n","protected":false},"featured_media":0,"template":"","categories":[150],"tags":[],"class_list":["post-3319","news","type-news","status-publish","hentry","category-ern-ithaca-event"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ERN-ITHACA webinar 10 &quot;Incidental and secondary findings from exome\/genome sequencing : The views of various European countries and ESHG&quot; - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ern-ithaca.eu\/es\/news\/ern-ithaca-webinar-10-incidental-and-secondary-findings-from-exome-genome-sequencing-the-views-of-various-european-countries-and-eshg\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ERN-ITHACA webinar 10 &quot;Incidental and secondary findings from exome\/genome sequencing : The views of various European countries and ESHG&quot; - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"The issue of&nbsp;incidental data, which has always existed in genetics, is becoming exponential with the advent of genomic medicine. 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