{"id":7283,"date":"2025-03-18T15:39:51","date_gmt":"2025-03-18T14:39:51","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?post_type=news&#038;p=7283"},"modified":"2025-04-08T14:25:27","modified_gmt":"2025-04-08T12:25:27","slug":"2025-call-for-epags-application-now-open","status":"publish","type":"news","link":"https:\/\/ern-ithaca.eu\/es\/events-news\/news\/2025-call-for-epags-application-now-open\/","title":{"rendered":"2025 call for new ePAGs application now open!"},"content":{"rendered":"<p class=\"wp-block-paragraph\">European Patient Advocacy Groups (ePAGs) are essentiels to ERNs. Their mission is to be the voice of patients and their families in all the different projects carried out by ITHACA. Within our network, ePAGs and specialists, whether doctors or researchers, work hand in hand towards the same goal: <strong>improving the lives of those with rare malformative syndromes &amp;\u00a0 neurodevelopmental disorders.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">We are constantly striving to strengthen this patient-physician partnership, and to further build our ePAG community. A rich and efficient network of associations is a valuable tool for patients and their families.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>You are part of an association of patients with the scope of ITHACA and would you like to represent your patients community at the European level?<\/strong> <strong>We&#8217;re calling for new ePAGs to join our Patient Board<\/strong> to work with other associations, clinicians and researchers on various projects dedicated to rare malformative diseases and neurodevelomental disorders.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Application Process :\u00a0To apply, send to <a href=\"mailto:anne.hugon@aphp.fr\">anne.hugon@aphp.fr<\/a> the following documents by\u00a0April 30, 2025<\/strong>. The documents has to be written in English.<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Endorsement Letter from your Patient organisation (see our template <a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2025\/03\/1.ePAG-Endorsement-Letter_template_2025_ITHACA-2.docx\">AQU\u00cd<\/a>)<\/li>\n\n\n\n<li>Short CV<\/li>\n\n\n\n<li>Motivation Letter<\/li>\n<\/ul>","protected":false},"excerpt":{"rendered":"<p>European Patient Advocacy Groups (ePAGs) are essentiels to ERNs. Their mission is to be the voice of patients and their families in all the different projects carried out by ITHACA. Within our network, ePAGs and specialists, whether doctors or researchers, work hand in hand towards the same goal: improving the lives of those with rare [&hellip;]<\/p>\n","protected":false},"featured_media":0,"template":"","categories":[],"tags":[],"class_list":["post-7283","news","type-news","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>2025 call for new ePAGs application now open! - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ern-ithaca.eu\/es\/events-news\/news\/2025-call-for-epags-application-now-open\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"2025 call for new ePAGs application now open! - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"European Patient Advocacy Groups (ePAGs) are essentiels to ERNs. Their mission is to be the voice of patients and their families in all the different projects carried out by ITHACA. 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