{"id":3897,"date":"2023-12-01T15:23:44","date_gmt":"2023-12-01T14:23:44","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?page_id=3897"},"modified":"2024-06-12T16:36:40","modified_gmt":"2024-06-12T14:36:40","slug":"ern-guidelines-methodological-handbook","status":"publish","type":"page","link":"https:\/\/ern-ithaca.eu\/es\/ern-guidelines-methodological-handbook\/","title":{"rendered":"Manual metodol\u00f3gico de las directrices de la ERN"},"content":{"rendered":"<h2 class=\"wp-block-heading\" id=\"ern-guidelines-methodological-handbook\">Manual metodol\u00f3gico de las directrices de la ERN<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">El&nbsp;<a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-0-Intro-ERN-Guidelines.pdf\">DIRECTRICES DE LA ERN: Manual metodol\u00f3gico<\/a>&nbsp;Ya est\u00e1 disponible el programa de las Gu\u00edas de Pr\u00e1ctica Cl\u00ednica (GPC) de la ERN y otras herramientas de apoyo a la toma de decisiones cl\u00ednicas (TADCC).<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Este manual es el resultado de una exhaustiva revisi\u00f3n bibliogr\u00e1fica y de un proceso de consulta llevados a cabo por el consorcio encargado de la puesta en marcha del programa. La metodolog\u00eda presentada se basa en los \u201cest\u00e1ndares de referencia\u201d internacionales vigentes, que se han desarrollado a lo largo de los a\u00f1os y que utilizan los principales organismos y organizaciones internacionales y nacionales especializados en la elaboraci\u00f3n de gu\u00edas de pr\u00e1ctica cl\u00ednica y otras herramientas de apoyo a la toma de decisiones cl\u00ednicas.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Este material supone un importante paso adelante en el programa de gu\u00edas cl\u00ednicas (CPG) de las RER y constituye un elemento y una herramienta clave para la labor de las RER en la elaboraci\u00f3n, adaptaci\u00f3n, adopci\u00f3n y evaluaci\u00f3n de las diferentes gu\u00edas y subproductos t\u00e9cnicos que, a partir de ahora, utilizar\u00e1n todas las RER. La metodolog\u00eda garantizar\u00e1 la calidad y la estandarizaci\u00f3n de las gu\u00edas cl\u00ednicas (CPG) y los documentos de apoyo cl\u00ednico (CDST) elaborados y utilizados por las ERN, que constituyen la columna vertebral del proceso de diagn\u00f3stico y tratamiento de los pacientes que padecen enfermedades raras, de baja prevalencia o complejas.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">El manual incluye 12 directrices independientes que abordan los siguientes aspectos conceptuales y metodol\u00f3gicos del programa:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-1-Prioritisation_ERN-Guidelines.pdf\">1#: Establecimiento de prioridades<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-2-Appraisal_Existing_CPGCDST_ERN-Guidelines.pdf\">Evaluaci\u00f3n 2#<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-3-AdaptationAdoption_CPGCDST_Guidelines.pdf\">3# Adaptaci\u00f3n y adopci\u00f3n<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-4-Elaboration_CPG_ERN-Guidelines.pdf\">4# Elaboraci\u00f3n de las directrices cl\u00ednicas (CPG)<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-5-Elaboration_Clinical_Consensus_Statements_ERN-Guidelines.pdf\">5# Elaboraci\u00f3n de declaraciones de consenso cl\u00ednico<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-6-Elaboration_Evidence_Reports_ERN-Guidelines.pdf\">6# Elaboraci\u00f3n de informes de pruebas<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-7-Pathways_ERN_Guidelines.pdf\">7# Elaboraci\u00f3n de itinerarios<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-8-Evidence-Based-Protocols_ERN-Guidelines.pdf\">8# Elaboraci\u00f3n de protocolos basados en la evidencia<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-9-Dos_Donts_Factsheets_ERN-Guidelines.pdf\">9# Elaboraci\u00f3n de fichas informativas sobre lo que se debe y no se debe hacer<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-10-Quality-Measures_ERN-Guidelines.pdf\">10# Elaboraci\u00f3n de indicadores de calidad<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-11-Patient-Information-Booklets_ERN-Guidelines.pdf\">11# Elaboraci\u00f3n de folletos informativos para pacientes<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-12-Uptake-of-CPGs-and-CDSTs_ERN-Guidelines.pdf\">12# Evaluaci\u00f3n de la aceptaci\u00f3n de las gu\u00edas cl\u00ednicas y del CDST<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2024\/06\/Handbook-13-_-ern_cpg-cdst_hb13_en-june-2024-Patients-involvment-in-CPGs-and-CDTS-2.pdf\">13# Participaci\u00f3n de los pacientes en las gu\u00edas cl\u00ednicas y en los procesos de toma de decisiones compartidas sobre enfermedades raras<\/a><\/li>\n<\/ul>","protected":false},"excerpt":{"rendered":"<p>ERN Guidelines Methodological Handbook The&nbsp;ERN GUIDELINES Methodological Handbook&nbsp;of the programme of ERN Clinical Practice Guidelines (CPG) and other Clinical Decision Support Tools (CDST) is now available. This handbook is the outcome of the extensive literature review and consultation process carried out by the Consortium in charge of the implementation of the Programme. The presented methodology [&hellip;]<\/p>\n","protected":false},"author":253,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-3897","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ERN Guidelines Methodological Handbook - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ern-ithaca.eu\/es\/ern-guidelines-methodological-handbook\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ERN Guidelines Methodological Handbook - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"ERN Guidelines Methodological Handbook The&nbsp;ERN GUIDELINES Methodological Handbook&nbsp;of the programme of ERN Clinical Practice Guidelines (CPG) and other Clinical Decision Support Tools (CDST) is now available. 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