{"id":4680,"date":"2024-03-28T10:26:04","date_gmt":"2024-03-28T09:26:04","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?page_id=4680"},"modified":"2026-04-08T16:05:10","modified_gmt":"2026-04-08T14:05:10","slug":"breakout-sessions","status":"publish","type":"page","link":"https:\/\/ern-ithaca.eu\/es\/events-news\/eurondd\/breakout-sessions\/","title":{"rendered":"Breakout Sessions"},"content":{"rendered":"

During the workshop you can participate at three breakout sessions.<\/p>\n\n\n\n

The different topics offer the chance to make deep dive from multidisciplinary view, connect the gathered knowledge in the morning sessions and define the way forward in order to further optimise our research, education and organization of care & cure.<\/p>\n\n\n\n

The two rounds are on Thursday 9 April from 14:30 till 15:45 and the second from 16:15 till 17:30.
The third round is on Friday, 10 April is from 14:15 till 15.30.<\/p>\n\n\n\n

Breakout sessions on Thursday April 9 (14:30 \u2013 17:30; 2 parallel rounds of 75 minutes)<\/strong><\/p>\n\n\n\n

Topics of the first round <\/strong>(14:30 -15:45)<\/p>\n\n\n\n

    \n
  1. Solving the undiagnosed: How recent insights translate into optimized workflows. (WIGURA) Katrin Ounap, Helene Cederroth, Zeynep T\u00fcmer, Tjitske Kleefstra<\/strong> (fully booked)<\/em><\/li>\n\n\n\n
  2. Pain in people with intellectual disabilities: methodical and interdisciplinary collaboration (an educational session ECHO). Leendert Sneep & Nanda de Knegt<\/strong><\/li>\n\n\n\n
  3. From Guideline to Practice – Implementing ERN ITHACA Guidelines (an educational session; CONRAD) Mirthe Klein Haneveld, Agnies van Eeghen  & co-workers cross Europe<\/strong><\/li>\n\n\n\n
  4. From Principles to Practice: Interprofessional Collaboration in Rare Genetic Intellectual Disability Syndromes \u2013 A European Round Table. (DELTA) Mana Nasori, Kim Oostrom, Lotte Haverman, Sylvia Huisman <\/strong><\/li>\n<\/ol>\n\n\n\n

    Exchange break<\/em><\/strong> (15:45 \u2013 16:15)<\/p>\n\n\n\n

    Topics of the second round <\/strong>(16:15 \u2013 17:30)<\/p>\n\n\n\n

      \n
    1. Towards Precision Medicine for NDD. (WIGURA) Geatan Lesca, Beatrice Desnous, Adreas Roos, Kasia Kotulska<\/strong> (fully booked)<\/em><\/li>\n\n\n\n
    2. From training skills to enabling interactions: A new paradigm in AAC for individuals with neurodevelopmental disorders and complex communication needs (an educational session; ECHO). Gillian Townend, Maartje ten Hooven-Radstaake, Cindy Navis, Paulina Rutka, El\u017cbieta Dawidek<\/strong><\/li>\n\n\n\n
    3. Building Patient Registries under the GDPR \u2013 The Good, the Bad and the Ugly (an educational session followed by a roundtable discussion; an extended session till 18:00 hours DELTA). Christian Gebhard, David Townend<\/strong><\/li>\n\n\n\n
    4. Neuropsychological insights: Cognition as a bridge between brain and behaviour in rare genetic syndromes? (CONRAD) Anja Bos-Roubos, Jennifer Kramer, Carmen Oldenboom, Ellen Wingberm\u00fchle, Jos Egger<\/strong> (fully booked)<\/em><\/li>\n\n\n\n
    5. From Networks to Norms: Developing First European Recommendations and Care Principles for PIMD \/ Polyhandicap. (BRAVO) Sylvia Huisman, Annette van der Putten, Marie-Christine Rousseau, Ilse H. Zaal-Schuller<\/strong><\/li>\n<\/ol>\n\n\n\n

      Breakout sessions on Friday April 10 (14:30 \u2013 15:15; parallel rounds of 75 minutes)<\/strong><\/p>\n\n\n\n

      Topics of the third round <\/strong>(14:15 \u2013 15:30)<\/p>\n\n\n\n

        \n
      1. Measuring what matters in genetic neurodevelopmental disorders: trials and care. (WIGURA _ CONRAD) Agnies van Eeghen & Ellen Elsman<\/strong> (fully booked)<\/em><\/li>\n\n\n\n
      2. Transition of Care for Adults with Intellectual Disabilities in Genetic Syndromes. (DELTA_ECHO) Nikolinka Yordanova, Savi Shishkov, Laura de Graaff, Kasia Swieczkowska<\/strong><\/li>\n\n\n\n
      3. Communication support for individuals with neurodevelopmental disorders and complex communication needs: sharing best practices (a round table discussion; ZWIRKO). Gillian Townend, Maartje ten Hooven-Radstaake, Cindy Navis, Paulina Rutka, El\u017cbieta Dawidek<\/strong><\/li>\n<\/ol>\n\n\n\n

        Curious what the discussions are about?<\/em>
        Under this link you will find more details of the different breakout sessions<\/a><\/em>.<\/p>\n\n\n\n

        Forgot to select your break-out session preferences?
        <\/em>Please note that the preference form has now closed. If you would still like to share your choices, you\u2019re welcome to visit the registration desk during the breaks.<\/p>\n\n\n\n\n\n\n\n\n\n

        <\/p>","protected":false},"excerpt":{"rendered":"

        During the workshop you can participate at three breakout sessions. The different topics offer the chance to make deep dive from multidisciplinary view, connect the gathered knowledge in the morning sessions and define the way forward in order to further optimise our research, education and organization of care & cure. The two rounds are on […]<\/p>\n","protected":false},"author":253,"featured_media":0,"parent":1924,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-4680","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nBreakout Sessions - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ern-ithaca.eu\/es\/events-news\/eurondd\/breakout-sessions\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Breakout Sessions - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"During the workshop you can participate at three breakout sessions. 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