{"id":7549,"date":"2025-05-21T16:05:29","date_gmt":"2025-05-21T14:05:29","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?post_type=resources&#038;p=7549"},"modified":"2025-11-24T14:08:11","modified_gmt":"2025-11-24T13:08:11","slug":"ern-ithaca-webinar-tsc-associated-neuropsychiatric-disorders-and-the-tandem-project","status":"publish","type":"resources","link":"https:\/\/ern-ithaca.eu\/es\/education\/documentation-for-patients\/ern-ithaca-webinar-tsc-associated-neuropsychiatric-disorders-and-the-tandem-project\/","title":{"rendered":"Seminario web de ERN-ITHACA: Trastornos neuropsiqui\u00e1tricos asociados al TSC y el proyecto TANDem"},"content":{"rendered":"<p class=\"wp-block-paragraph\">El complejo de esclerosis tuberosa (CET) es un trastorno gen\u00e9tico multisist\u00e9mico que se caracteriza por diversos trastornos neuropsiqui\u00e1tricos asociados al CET (TAND), los cuales afectan de manera significativa a la salud mental y al bienestar de las personas con CET y de sus cuidadores. Los TAND constituyen la principal preocupaci\u00f3n de las familias de todo el mundo, pero su diagn\u00f3stico y tratamiento son muy insuficientes. En este seminario web, presentamos el concepto de los TAND y propusimos estrategias para su manejo.<\/p>\n\n\n\n<div style=\"height:51px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">Programa<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Bienvenida e introducci\u00f3n<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Ponente: Anna Jansen<\/li>\n\n\n\n<li>Procedencia: Hospital Universitario de Amberes, Amberes, B\u00e9lgica<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>El camino con el TSC: una perspectiva familiar<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Ponente: Mary Vasseghi<\/li>\n\n\n\n<li>De: TSC Irlanda y Trinity College de Dubl\u00edn<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Trastornos neuropsiqui\u00e1tricos asociados al TSC y el proyecto TANDem<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Ponente: Anna Jansen<\/li>\n\n\n\n<li>De: Hospital Universitario de Amberes<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Atenci\u00f3n al bienestar de los cuidadores<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Ponente: Liezl Schlebush<\/li>\n\n\n\n<li>Procedencia: Universidad de Ciudad del Cabo, Sud\u00e1frica<\/li>\n<\/ul>\n\n\n\n<div style=\"height:51px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"Seminario web de la ERN ITHACA: &quot;Trastornos neuropsiqui\u00e1tricos asociados al TSC y el proyecto TANDem&quot;\" width=\"640\" height=\"360\" src=\"https:\/\/www.youtube.com\/embed\/a6IDAnN7Pq0?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Puedes consultar la presentaci\u00f3n de PowerPoint del seminario web <a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2025\/05\/2025-05-20-Webinar_-TSC-TAND-TANDem-projectOKv1.pdf\">AQU\u00cd<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"<p>Tuberous Sclerosis Complex (TSC) is a multi-system genetic disorder with various TSC-Associated Neuropsychiatric Disorders (TAND) that significantly impact the mental health and wellbeing of individuals with TSC and their caregivers. TAND represents the number one concern to families worldwide, yet is highly under-identified and under-treated. In this webinar, we introduced the concept of TAND and [&hellip;]<\/p>\n","protected":false},"featured_media":8591,"template":"","tags":[],"resources-type":[17],"class_list":["post-7549","resources","type-resources","status-publish","has-post-thumbnail","hentry","resources-type-webinar"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ERN-ITHACA webinar: TSC-associated neuropsychiatric disorders and the TANDem project - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ern-ithaca.eu\/es\/education\/documentation-for-patients\/ern-ithaca-webinar-tsc-associated-neuropsychiatric-disorders-and-the-tandem-project\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ERN-ITHACA webinar: TSC-associated neuropsychiatric disorders and the TANDem project - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"Tuberous Sclerosis Complex (TSC) is a multi-system genetic disorder with various TSC-Associated Neuropsychiatric Disorders (TAND) that significantly impact the mental health and wellbeing of individuals with TSC and their caregivers. 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