{"id":7348,"date":"2025-04-01T10:06:37","date_gmt":"2025-04-01T08:06:37","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?post_type=events&#038;p=7348"},"modified":"2025-04-01T10:06:38","modified_gmt":"2025-04-01T08:06:38","slug":"ern-ithaca-webinar-on-tsc-associated-neuropsychiatric-disorders-tand-and-the-tandem-project","status":"publish","type":"events","link":"https:\/\/ern-ithaca.eu\/fr\/events-news\/upcoming-events\/ern-ithaca-webinar-on-tsc-associated-neuropsychiatric-disorders-tand-and-the-tandem-project\/","title":{"rendered":"ERN-ITHACA Webinar on TSC-associated Neuropsychiatric Disorders (TAND) and the TANDem project\u00a0"},"content":{"rendered":"<p class=\"wp-block-paragraph\">Tuberous Sclerosis Complex (TSC) is a multi-system genetic disorder with various TSC-Associated Neuropsychiatric Disorders (TAND) that significantly impact the mental health and wellbeing of individuals with TSC and their caregivers. TAND represents the number one concern to families worldwide, yet is highly under-identified and under-treated. In this webinar, we will introduce the concept of TAND and propose strategies for management.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Date: Tuesday 20 May, 2025, 17:00 \u2013 18:30 (CET)<\/p>\n\n\n\n<div style=\"height:42px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">Programme<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Bienvenue et pr\u00e9sentation<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Speaker\u202f:\u00a0Anna Jansen<\/li>\n\n\n\n<li>From\u202f: Antwerp University Hospital, Antwerp, Belgium<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>The journey with TSC, a family perspective<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Speaker\u202f:\u00a0Mary Vasseghi<\/li>\n\n\n\n<li>From\u202f: TSC Ireland and Trinity College Dublin<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>TSC-Associated Neuropsychiatric Disorders and the TANDem project<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Speaker\u202f:\u00a0Anna Jansen<\/li>\n\n\n\n<li>From\u202f: Antwerp University Hospital<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Focus on caregiver wellbeing<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Speaker\u202f:\u00a0Liezl Schlebush<\/li>\n\n\n\n<li>From\u202f: University of Cape Town, South-Africa<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><em>Temps r\u00e9serv\u00e9 \u00e0 la discussion<\/em><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Conclusion with speakers and moderator<\/strong>&nbsp;<\/p>\n\n\n\n<div style=\"height:42px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/events.teams.microsoft.com\/event\/7ad0429e-b25d-482b-a7bd-14e14e309116@2461c129-d44f-406d-a778-d1a3c4c1527c\">ICI<\/a> to register<\/p>","protected":false},"featured_media":0,"template":"","categories":[],"tags":[],"class_list":["post-7348","events","type-events","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ERN-ITHACA Webinar on TSC-associated Neuropsychiatric Disorders (TAND) and the TANDem project\u00a0 - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"noindex, follow\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ERN-ITHACA Webinar on TSC-associated Neuropsychiatric Disorders (TAND) and the TANDem project\u00a0 - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"Tuberous Sclerosis Complex (TSC) is a multi-system genetic disorder with various TSC-Associated Neuropsychiatric Disorders (TAND) that significantly impact the mental health and wellbeing of individuals with TSC and their caregivers. TAND represents the number one concern to families worldwide, yet is highly under-identified and under-treated. 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