{"id":3897,"date":"2023-12-01T15:23:44","date_gmt":"2023-12-01T14:23:44","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?page_id=3897"},"modified":"2024-06-12T16:36:40","modified_gmt":"2024-06-12T14:36:40","slug":"ern-guidelines-methodological-handbook","status":"publish","type":"page","link":"https:\/\/ern-ithaca.eu\/fr\/ern-guidelines-methodological-handbook\/","title":{"rendered":"Manuel m\u00e9thodologique des lignes directrices de l'ERN"},"content":{"rendered":"<h2 class=\"wp-block-heading\" id=\"ern-guidelines-methodological-handbook\">Manuel m\u00e9thodologique des lignes directrices de l'ERN<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Le&nbsp;<a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-0-Intro-ERN-Guidelines.pdf\">GUIDES DE L'ERN : Manuel m\u00e9thodologique<\/a>&nbsp;Le programme des recommandations de pratique clinique (RPC) du R\u00e9seau europ\u00e9en de r\u00e9f\u00e9rence (ERN) et d'autres outils d'aide \u00e0 la d\u00e9cision clinique (OADC) est d\u00e9sormais disponible.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Ce manuel est le fruit d\u2019une analyse documentaire approfondie et d\u2019un vaste processus de consultation men\u00e9s par le consortium charg\u00e9 de la mise en \u0153uvre du programme. La m\u00e9thodologie pr\u00e9sent\u00e9e s\u2019appuie sur les \u201c normes de r\u00e9f\u00e9rence \u201d internationales actuelles, \u00e9labor\u00e9es au fil des ans et utilis\u00e9es par les principaux organismes et organisations internationaux et nationaux sp\u00e9cialis\u00e9s dans l\u2019\u00e9laboration de recommandations de pratique clinique et d\u2019autres outils d\u2019aide \u00e0 la d\u00e9cision clinique.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Ce document constitue une avanc\u00e9e majeure du programme CPG des ERN et repr\u00e9sente un \u00e9l\u00e9ment cl\u00e9 ainsi qu\u2019un outil essentiel pour le travail des ERN dans l\u2019\u00e9laboration, l\u2019adaptation, l\u2019adoption et l\u2019\u00e9valuation des diff\u00e9rentes recommandations et sous-produits techniques qui seront d\u00e9sormais utilis\u00e9s par tous les ERN. Cette m\u00e9thodologie garantira la qualit\u00e9 et la normalisation des recommandations cliniques (CPG) et des documents techniques de soutien clinique (CDST) \u00e9labor\u00e9s et utilis\u00e9s par les ERN, qui constituent la colonne vert\u00e9brale du processus de diagnostic et de traitement des patients atteints de maladies rares, \u00e0 faible pr\u00e9valence ou complexes.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Ce manuel comprend 12 guides distincts traitant des aspects conceptuels et m\u00e9thodologiques suivants du programme :<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-1-Prioritisation_ERN-Guidelines.pdf\">1# D\u00e9finition des priorit\u00e9s<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-2-Appraisal_Existing_CPGCDST_ERN-Guidelines.pdf\">\u00c9valuation 2#<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-3-AdaptationAdoption_CPGCDST_Guidelines.pdf\">3# Adaptation et adoption<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-4-Elaboration_CPG_ERN-Guidelines.pdf\">4# \u00c9laboration des lignes directrices cliniques (CPG)<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-5-Elaboration_Clinical_Consensus_Statements_ERN-Guidelines.pdf\">5# \u00c9laboration de d\u00e9clarations de consensus clinique<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-6-Elaboration_Evidence_Reports_ERN-Guidelines.pdf\">6# \u00c9laboration de rapports sur les donn\u00e9es probantes<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-7-Pathways_ERN_Guidelines.pdf\">7# \u00c9laboration de parcours<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-8-Evidence-Based-Protocols_ERN-Guidelines.pdf\">8# \u00c9laboration de protocoles fond\u00e9s sur des donn\u00e9es probantes<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-9-Dos_Donts_Factsheets_ERN-Guidelines.pdf\">9# \u00c9laboration de fiches pratiques sur les bonnes pratiques et les choses \u00e0 \u00e9viter<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-10-Quality-Measures_ERN-Guidelines.pdf\">10# \u00c9laboration d'indicateurs de qualit\u00e9<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-11-Patient-Information-Booklets_ERN-Guidelines.pdf\">11# \u00c9laboration de brochures d'information destin\u00e9es aux patients<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Handbook-12-Uptake-of-CPGs-and-CDSTs_ERN-Guidelines.pdf\">12# \u00c9valuation de l'adoption des recommandations cliniques (CPG) et des directives de prise en charge clinique (CDST)<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2024\/06\/Handbook-13-_-ern_cpg-cdst_hb13_en-june-2024-Patients-involvment-in-CPGs-and-CDTS-2.pdf\">13# Participation des patients \u00e0 l'\u00e9laboration des recommandations cliniques et des strat\u00e9gies de prise en charge clinique des maladies rares<\/a><\/li>\n<\/ul>","protected":false},"excerpt":{"rendered":"<p>ERN Guidelines Methodological Handbook The&nbsp;ERN GUIDELINES Methodological Handbook&nbsp;of the programme of ERN Clinical Practice Guidelines (CPG) and other Clinical Decision Support Tools (CDST) is now available. This handbook is the outcome of the extensive literature review and consultation process carried out by the Consortium in charge of the implementation of the Programme. The presented methodology [&hellip;]<\/p>\n","protected":false},"author":253,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-3897","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ERN Guidelines Methodological Handbook - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ern-ithaca.eu\/fr\/ern-guidelines-methodological-handbook\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ERN Guidelines Methodological Handbook - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"ERN Guidelines Methodological Handbook The&nbsp;ERN GUIDELINES Methodological Handbook&nbsp;of the programme of ERN Clinical Practice Guidelines (CPG) and other Clinical Decision Support Tools (CDST) is now available. 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