{"id":478,"date":"2022-02-12T16:50:59","date_gmt":"2022-02-12T15:50:59","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?page_id=478"},"modified":"2026-09-03T15:54:59","modified_gmt":"2026-09-03T13:54:59","slug":"healthcare-cpms","status":"publish","type":"page","link":"https:\/\/ern-ithaca.eu\/fr\/our-workgroups\/healthcare-cpms\/","title":{"rendered":"Sant\u00e9 et CPMS 2.0 (WG4)"},"content":{"rendered":"<h2 id=\"taskforce-lead\" class=\"wp-block-heading\">Pr\u00e9sidents des groupes de travail<\/h2>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:15%\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"675\" height=\"908\" src=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Chirita-Emandi-Adela-picture.png\" alt=\"\" class=\"wp-image-8884\" srcset=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Chirita-Emandi-Adela-picture.png 675w, https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2022\/02\/Chirita-Emandi-Adela-picture-446x600.png 446w\" sizes=\"auto, (max-width: 675px) 100vw, 675px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-vertically-aligned-center is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:85%\">\n<p class=\"wp-block-paragraph\"><strong>Prof. Dr Adela Chirita-Emandi<\/strong><br>(Timisoara, Roumanie)<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:15%\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"200\" height=\"200\" src=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2026\/02\/1754819952333-1.jpeg\" alt=\"\" class=\"wp-image-9063\"\/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-vertically-aligned-center is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:85%\">\n<p class=\"wp-block-paragraph\"><strong>Dr Sofia Douzgou Houge<\/strong><br>(Bergen, Norv\u00e8ge)<\/p>\n<\/div>\n<\/div>\n\n\n\n<div style=\"height:34px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Ceci <strong>Lot de travail <\/strong>vise \u00e0 am\u00e9liorer l'acc\u00e8s \u00e0 des soins de sant\u00e9 hautement sp\u00e9cialis\u00e9s et directs pour les syndromes associ\u00e9s \u00e0 des malformations rares et \u00e0 une d\u00e9ficience intellectuelle, gr\u00e2ce au d\u00e9veloppement de la&nbsp;<strong>Syst\u00e8me de gestion clinique des patients (CPMS)<\/strong>,<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">CPMS 2.0 (<a href=\"https:\/\/cpms2.ern-net.eu\/\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/cpms2.ern-net.eu\/<\/a>) est une plateforme s\u00e9curis\u00e9e permettant aux cliniciens europ\u00e9ens d'\u00e9changer en ligne sur les dossiers de leurs patients.&nbsp;&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Introduction et guides d'utilisation :\u00a0<a href=\"https:\/\/ern-ithaca.eu\/fr\/how-to-use-cpms-2-0\/\" data-type=\"link\" data-id=\"https:\/\/ern-ithaca.eu\/how-to-use-cpms-2-0\/\">lien<\/a>\u00a0<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Apr\u00e8s avoir contribu\u00e9 au d\u00e9veloppement de CPMS 2.0, ce groupe de travail s'attache d\u00e9sormais \u00e0 promouvoir son utilisation \u00e0 grande \u00e9chelle. Outre l'assistance technique que nous apportons aux utilisateurs, nous organisons r\u00e9guli\u00e8rement des ateliers ITHACA afin d'\u00e9changer sur des cas complexes li\u00e9s \u00e0 CPMS 2.0.&nbsp;&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Inscrivez-vous \u00e0 la prochaine s\u00e9ance de ITHACA qui aura lieu le 23 octobre :\u00a0<a href=\"https:\/\/forms.cloud.microsoft\/Pages\/ResponsePage.aspx?id=KcFhJE_UbUCneNGjxMFSfIANoyFkMTdDiH-Sf-l0PwlUQUZFTUtPWlVWV0ZGTUZLNzBJQ1Q4MjI5NiQlQCN0PWcu\"><a href=\"https:\/\/ern-ithaca.eu\/fr\/?mailpoet_router&amp;endpoint=track&amp;action=click&amp;data=WyIxNzkyIiwiMzJiYWE0OTVlY2NkMzUzZTYxZDg5MWIwZWZlZjMyZWIiLCI4MTciLCJjY2YxOGI1OTZiNTQiLGZhbHNlXQ\">Clinique ERN-ITHACA, le 23 octobre 2026 \u2013 Remplir le formulaire<\/a><\/a><\/p>\n\n\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">Formations en ligne CPMS 2.0<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Vous trouverez ci-dessous la liste des formations actuellement pr\u00e9vues pour les praticiens CPMS 2.0 : <\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\ud83d\uddd3\ufe0f <strong>15 septembre 2026<\/strong> | 10 h 00 CET : <a href=\"https:\/\/ecconf.webex.com\/ecconf\/j.php?MTID=m56479005832db1173f682d862d208f5b\" data-type=\"link\" data-id=\"https:\/\/ecconf.webex.com\/ecconf\/j.php?MTID=m56479005832db1173f682d862d208f5b\">Lien<\/a><\/li>\n\n\n\n<li>\ud83d\uddd3\ufe0f <strong>13 octobre 2026<\/strong> | 15 h 00 CET : <a href=\"https:\/\/ecconf.webex.com\/ecconf\/j.php?MTID=m5824ed9f71b31eedd17b6a3cc621f60a\" data-type=\"link\" data-id=\"https:\/\/ecconf.webex.com\/ecconf\/j.php?MTID=m5824ed9f71b31eedd17b6a3cc621f60a\">Lien<\/a><\/li>\n\n\n\n<li>\ud83d\uddd3\ufe0f <strong>12 novembre 2026<\/strong> | 15 h 00 CET : <a href=\"https:\/\/ecconf.webex.com\/ecconf\/j.php?MTID=m835d2e37a3e3fb2b612afdb89a6611c9\" data-type=\"link\" data-id=\"https:\/\/ecconf.webex.com\/ecconf\/j.php?MTID=m835d2e37a3e3fb2b612afdb89a6611c9\">Lien<\/a><\/li>\n\n\n\n<li>\ud83d\uddd3\ufe0f <strong>8 d\u00e9cembre 2026<\/strong> | 10 h 00 CET : <a href=\"https:\/\/ecconf.webex.com\/ecconf\/j.php?MTID=mfd5a9dc6fe4d2e37425b70531c3810a4\" data-type=\"link\" data-id=\"https:\/\/ecconf.webex.com\/ecconf\/j.php?MTID=mfd5a9dc6fe4d2e37425b70531c3810a4\">Lien <\/a><\/li>\n<\/ul>\n\n\n\n<div style=\"height:60px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">Documentation relative \u00e0 CPMS 2.0<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Ressources vid\u00e9o <\/strong><\/p>\n\n\n\n<a class=\"wp-block-ernithaca-useful-links\" href=\"https:\/\/webgate.ec.europa.eu\/ern\/imgs\/CPMS2.mp4\"><div class=\"documents-body\">Pr\u00e9sentation vid\u00e9o du CPMS 2.0 (9 min)<\/div><div class=\"icon-circle\"><span class=\"icon-ernithaca-click\"><\/span><\/div><\/a>\n\n\n\n<a class=\"wp-block-ernithaca-useful-links\" href=\"https:\/\/webgate.ec.europa.eu\/ern\/imgs\/signup.mp4\"><div class=\"documents-body\">Vid\u00e9o tutoriel expliquant comment s'inscrire \u00e0 CPMS 2.0 (5 min)<\/div><div class=\"icon-circle\"><span class=\"icon-ernithaca-click\"><\/span><\/div><\/a>\n\n\n\n<a class=\"wp-block-ernithaca-useful-links\" href=\"https:\/\/webgate.ec.europa.eu\/ern\/imgs\/CPMS2-Webinar-MOBILE.MP4\"><div class=\"documents-body\">Vid\u00e9o tutoriel sur l'utilisation de l'application mobile CPMS 2.0 (15 min)<\/div><div class=\"icon-circle\"><span class=\"icon-ernithaca-click\"><\/span><\/div><\/a>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Ressources textuelles<\/strong><\/p>\n\n\n\n<a class=\"wp-block-ernithaca-documents\" href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2025\/02\/CPMS-2.0-FAQ-V1.2-final.pdf\"><div class=\"documents-body\">CPMS 2.0 - F.A.Q. (Foire aux questions)<\/div><div class=\"icon-circle\"><span class=\"icon-ernithaca-document\"><\/span><\/div><\/a>\n\n\n\n<a class=\"wp-block-ernithaca-documents\" href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2025\/07\/CPMS2.0_Care_ShortGuide_v4-1.pdf\"><div class=\"documents-body\">CPMS 2.0 : Guide succinct \u00e0 l'intention des cliniciens<\/div><div class=\"icon-circle\"><span class=\"icon-ernithaca-document\"><\/span><\/div><\/a>\n\n\n\n<a class=\"wp-block-ernithaca-documents\" href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2025\/07\/CPMS2.0_Care_ReferenceManual_v9.pdf\"><div class=\"documents-body\">Manuel de r\u00e9f\u00e9rence CPMS 2.0<\/div><div class=\"icon-circle\"><span class=\"icon-ernithaca-document\"><\/span><\/div><\/a>\n\n\n\n<a class=\"wp-block-ernithaca-documents\" href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2025\/07\/2025_ITHACA-CPMS2.0-Template_FCR.pptx\"><div class=\"documents-body\">D\u00e9p\u00f4t du dossier d'un nouveau patient \u2013 mod\u00e8le PowerPoint<\/div><div class=\"icon-circle\"><span class=\"icon-ernithaca-document\"><\/span><\/div><\/a>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>CPMS 2.0 Formulaires de consentement<\/strong><\/p>\n\n\n\n<a class=\"wp-block-ernithaca-documents\" href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2025\/02\/CPMS-2.0-Patient-Consent-Form-template-EU-V4.0-final.docx\"><div class=\"documents-body\">Mod\u00e8le de formulaire de consentement du patient CPMS 2.0 \u2013 Anglais<\/div><div class=\"icon-circle\"><span class=\"icon-ernithaca-document\"><\/span><\/div><\/a>\n\n\n\n<a class=\"wp-block-ernithaca-documents\" href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2025\/02\/Patient-Consent-translations-2.zip\"><div class=\"documents-body\">Mod\u00e8le de consentement du patient CPMS 2.0 \u2013 toutes les langues<\/div><div class=\"icon-circle\"><span class=\"icon-ernithaca-document\"><\/span><\/div><\/a>\n\n\n\n<a class=\"wp-block-ernithaca-documents\" href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2025\/02\/CPMS-2.0-Patient-Consent-Form-UA-Ares.pdf\"><div class=\"documents-body\">Mod\u00e8le de consentement du patient CPMS 2.0 \u2013 Ukrainien<\/div><div class=\"icon-circle\"><span class=\"icon-ernithaca-document\"><\/span><\/div><\/a>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>","protected":false},"excerpt":{"rendered":"<p>Workgroup chairs Prof. Dr. Adela Chirita-Emandi(Timisoara, Romania) Dr. Sofia Douzgou Houge(Bergen, Norway) This Workpackage aims to improve access to high specialty, direct healthcare for rare malformation and intellectual disability syndromes through the development of the&nbsp;Clinical Patient Management System (CPMS), CPMS 2.0 (https:\/\/cpms2.ern-net.eu\/) is a secure platform for online patient case discussions between European clinicians.&nbsp;&nbsp; Introduction [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":6017,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"template-pages\/template-page-generic.php","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-478","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Healthcare &amp; CPMS 2.0 (WG4) - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ern-ithaca.eu\/fr\/our-workgroups\/healthcare-cpms\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Healthcare &amp; CPMS 2.0 (WG4) - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"Workgroup chairs Prof. Dr. Adela Chirita-Emandi(Timisoara, Romania) Dr. Sofia Douzgou Houge(Bergen, Norway) This Workpackage aims to improve access to high specialty, direct healthcare for rare malformation and intellectual disability syndromes through the development of the&nbsp;Clinical Patient Management System (CPMS), CPMS 2.0 (https:\/\/cpms2.ern-net.eu\/) is a secure platform for online patient case discussions between European clinicians.&nbsp;&nbsp; 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