{"id":7549,"date":"2025-05-21T16:05:29","date_gmt":"2025-05-21T14:05:29","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?post_type=resources&#038;p=7549"},"modified":"2025-11-24T14:08:11","modified_gmt":"2025-11-24T13:08:11","slug":"ern-ithaca-webinar-tsc-associated-neuropsychiatric-disorders-and-the-tandem-project","status":"publish","type":"resources","link":"https:\/\/ern-ithaca.eu\/fr\/education\/documentation-for-patients\/ern-ithaca-webinar-tsc-associated-neuropsychiatric-disorders-and-the-tandem-project\/","title":{"rendered":"ERN-ITHACA webinar: TSC-associated neuropsychiatric disorders and the TANDem project"},"content":{"rendered":"<p class=\"wp-block-paragraph\">Tuberous Sclerosis Complex (TSC) is a multi-system genetic disorder with various TSC-Associated Neuropsychiatric Disorders (TAND) that significantly impact the mental health and wellbeing of individuals with TSC and their caregivers. TAND represents the number one concern to families worldwide, yet is highly under-identified and under-treated. In this webinar, we introduced the concept of TAND and proposed strategies for management.<\/p>\n\n\n\n<div style=\"height:51px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">Programme<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Bienvenue et pr\u00e9sentation<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Speaker\u202f:\u00a0Anna Jansen<\/li>\n\n\n\n<li>From\u202f: Antwerp University Hospital, Antwerp, Belgium<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>The journey with TSC, a family perspective<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Speaker\u202f:\u00a0Mary Vasseghi<\/li>\n\n\n\n<li>From\u202f: TSC Ireland and Trinity College Dublin<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>TSC-Associated Neuropsychiatric Disorders and the TANDem project<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Speaker\u202f:\u00a0Anna Jansen<\/li>\n\n\n\n<li>From\u202f: Antwerp University Hospital<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Focus on caregiver wellbeing<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Speaker\u202f:\u00a0Liezl Schlebush<\/li>\n\n\n\n<li>From\u202f: University of Cape Town, South-Africa<\/li>\n<\/ul>\n\n\n\n<div style=\"height:51px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"ERN ITHACA Webinar: &quot;TSC associated Neuropyschiatric Disorders and the TANDem project&quot;\" width=\"640\" height=\"360\" src=\"https:\/\/www.youtube.com\/embed\/a6IDAnN7Pq0?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Vous pouvez consulter la pr\u00e9sentation PowerPoint du webinaire <a href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2025\/05\/2025-05-20-Webinar_-TSC-TAND-TANDem-projectOKv1.pdf\">ICI<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"<p>Tuberous Sclerosis Complex (TSC) is a multi-system genetic disorder with various TSC-Associated Neuropsychiatric Disorders (TAND) that significantly impact the mental health and wellbeing of individuals with TSC and their caregivers. TAND represents the number one concern to families worldwide, yet is highly under-identified and under-treated. In this webinar, we introduced the concept of TAND and [&hellip;]<\/p>\n","protected":false},"featured_media":8591,"template":"","tags":[],"resources-type":[17],"class_list":["post-7549","resources","type-resources","status-publish","has-post-thumbnail","hentry","resources-type-webinar"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ERN-ITHACA webinar: TSC-associated neuropsychiatric disorders and the TANDem project - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ern-ithaca.eu\/fr\/education\/documentation-for-patients\/ern-ithaca-webinar-tsc-associated-neuropsychiatric-disorders-and-the-tandem-project\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ERN-ITHACA webinar: TSC-associated neuropsychiatric disorders and the TANDem project - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"Tuberous Sclerosis Complex (TSC) is a multi-system genetic disorder with various TSC-Associated Neuropsychiatric Disorders (TAND) that significantly impact the mental health and wellbeing of individuals with TSC and their caregivers. 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