{"id":8322,"date":"2025-10-17T13:09:10","date_gmt":"2025-10-17T11:09:10","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?post_type=resources&#038;p=8322"},"modified":"2025-10-17T13:28:50","modified_gmt":"2025-10-17T11:28:50","slug":"ern-ithaca-webinar-genetics-and-unique-populations-the-case-of-the-finnish-roma-irish-travellers","status":"publish","type":"resources","link":"https:\/\/ern-ithaca.eu\/fr\/education\/documentation-for-patients\/ern-ithaca-webinar-genetics-and-unique-populations-the-case-of-the-finnish-roma-irish-travellers\/","title":{"rendered":"WEBINAIRE ERN-ITHACA : G\u00c9N\u00c9TIQUE ET POPULATIONS PARTICULI\u00c8RES : LE CAS DES VOYAGEURS FINLANDAIS, ROMS ET IRLANDAIS"},"content":{"rendered":"<p class=\"wp-block-paragraph\">Europe is made up of many different populations both indigenous to Europe and those that migrated in over the centuries. Differing barriers in healthcare access means that rare and ultra rare disorders may cluster within some of these populations. Some have unique cultural norms that may differ from the general population or may face more difficulty in finding their way to healthcare professionals. It is important for clinicians working with these populations to develop an understanding of the unique issues faced by populations within their locality. How do we reach these communities, and how can the EU help reduce access barriers? This webinar answers these questions by exploring the EU context and the unique needs of these populations.<\/p>\n\n\n\n<div style=\"height:62px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">Programme<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Bienvenue et pr\u00e9sentation<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Jukka Moilanen or Johanna Uusimaa,\u00a0Oulu University\u00a0Hospital, Dept of Clinical Genetics and Rare Diseases Unit,\u00a0Oulu Finland.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Social determinants of health in European policy<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Tomas de Jong, European Public Health Alliance (EPHA), Belgium<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>The Finnish story : Founder effects &amp; genetic isolation-<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Outi Kuismin, Oulu University Hospital, Dept of Clinical Genetics and Rare Diseases Unit, Oulu Finland.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>The Romanian Roma<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Ioana Streata, Hospital Center, Craiova Romania.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>The Irish Travellers<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Sally Ann Lynch, CHI Crumlin &amp; Temple Street, Dublin, Rep of Ireland]<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><em>Temps r\u00e9serv\u00e9 \u00e0 la discussion<\/em><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Conclusion with speakers and moderator<\/strong>&nbsp;<\/p>\n\n\n\n<a class=\"wp-block-ernithaca-documents\" href=\"https:\/\/ern-ithaca.eu\/wp-content\/uploads\/2025\/10\/2025-10-14-Webinar_-ITHACA-templates_-Genetics-and-Unique-Populations.pdf\"><div class=\"documents-body\">Full powerpoint<\/div><div class=\"icon-circle\"><span class=\"icon-ernithaca-document\"><\/span><\/div><\/a>\n\n\n\n<div style=\"height:62px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">Enregistrement<\/h2>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"ERN-ITHACA Webinar: GENETICS AND UNIQUE POPULATIONS THE CASE OF THE FINNISH, ROMA &amp; IRISH TRAVELLERS\" width=\"640\" height=\"360\" src=\"https:\/\/www.youtube.com\/embed\/TI6uauJEY-E?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>","protected":false},"excerpt":{"rendered":"<p>Europe is made up of many different populations both indigenous to Europe and those that migrated in over the centuries. Differing barriers in healthcare access means that rare and ultra rare disorders may cluster within some of these populations. Some have unique cultural norms that may differ from the general population or may face more [&hellip;]<\/p>\n","protected":false},"featured_media":8324,"template":"","tags":[],"resources-type":[17],"class_list":["post-8322","resources","type-resources","status-publish","has-post-thumbnail","hentry","resources-type-webinar"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ERN-ITHACA WEBINAR: GENETICS AND UNIQUE POPULATIONS: THE CASE OF THE FINNISH, ROMA &amp; IRISH TRAVELLERS - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ern-ithaca.eu\/fr\/education\/documentation-for-patients\/ern-ithaca-webinar-genetics-and-unique-populations-the-case-of-the-finnish-roma-irish-travellers\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ERN-ITHACA WEBINAR: GENETICS AND UNIQUE POPULATIONS: THE CASE OF THE FINNISH, ROMA &amp; IRISH TRAVELLERS - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"Europe is made up of many different populations both indigenous to Europe and those that migrated in over the centuries. 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