Training on strategies to foster solutions of undiagnosed rare disease cases

The course, titled “Training on strategies to foster solutions of undiagnosed rare disease cases”, will be held at Istituto Superiore di Sanità (ISS), Rome, form 27-29 April 2020.

This initiative is a part of a series of training courses included in the framework of the European Joint Programme on Rare Diseases (EJP RD).

EJP RD is a EU funded project that counts ISS among its partners. The aim of the project is to develop a sustainable ecosystem allowing a virtuos circle between rare disease care, research and medical innovation.

The above mentioned course is open to the international research community, to clinicians and to medical specialists who have experience and concrete interest in the research and diagnosis of rare diseases.

Through the presentation of a selected number of “use cases” useful instruments and tools, that have been validated at international level, will be illustrated to the participants.

Moreover the course will facilitate networking among professionals involved in the field of rare diseases.

The course official language is english. The course is free of charge. Registration is open until 26 January 2020.

For the programme and other information see LINK

Online registration is available at LINK