{"id":6053,"date":"2024-10-29T15:50:48","date_gmt":"2024-10-29T14:50:48","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?page_id=6053"},"modified":"2026-05-06T16:22:30","modified_gmt":"2026-05-06T14:22:30","slug":"endorsed-guidelines","status":"publish","type":"page","link":"https:\/\/ern-ithaca.eu\/it\/guidelines\/endorsed-guidelines\/","title":{"rendered":"Linee guida approvate"},"content":{"rendered":"

Linee guida per la pratica clinica <\/strong>Le linee guida cliniche (CPG), o semplicemente \u201clinee guida\u201d, sono raccomandazioni su come diagnosticare e trattare una patologia. Sono redatte da esperti del settore medico con il supporto dei rappresentanti dei pazienti e sono rivolte ai medici, ma anche agli infermieri e a qualsiasi altro operatore sanitario.  <\/p>\n\n\n\n

Una linea guida riassume le attuali conoscenze mediche su una determinata malattia, valuta i benefici e i rischi delle procedure diagnostiche e dei trattamenti e fornisce raccomandazioni specifiche sulla base di tali informazioni. <\/p>\n\n\n\n

Poich\u00e9 le linee guida rappresentano uno strumento clinico fondamentale, \u00e8 fondamentale che siano affidabili. Il gruppo di lavoro sulle linee guida ERN-ITHACA sta quindi lavorando alla valutazione delle qualit\u00e0 metodologica delle linee guida esistenti sulle malattie rare<\/strong>. <\/p>\n\n\n\n

Le pubblicazioni che il gruppo di lavoro ritiene metodologicamente affidabili vengono approvate dal ERN-ITHACA e pubblicate su questa pagina web.<\/strong><\/p>\n\n\n\n

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Gestione degli adulti affetti dalla sindrome da delezione 22q11.2<\/strong><\/div>
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Gestione dei bambini affetti dalla sindrome da delezione 22q11.2<\/strong><\/strong><\/div>
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Identificazione e trattamento dei disturbi neuropsichiatrici associati alla sclerosi tuberosa complessa<\/strong><\/div>
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Assistenza alle ragazze e alle donne affette dalla sindrome di Turner<\/strong><\/div>
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Gestire la comunicazione delle persone affette dalla sindrome di Rett<\/strong><\/div>
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Sindrome di Bardet-Biedl: criteri diagnostici e gestione ottimizzati<\/strong><\/div>
<\/div><\/div><\/span><\/a><\/div>\n<\/div>\n<\/div>\n\n\n\n
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Coinvolgimento renale nella sclerosi tuberosa complessa<\/strong><\/strong><\/div>
<\/div><\/div><\/span><\/a><\/div>\n<\/div>\n\n\n\n
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<\/p>","protected":false},"excerpt":{"rendered":"

Clinical practice guidelines (CPGs), or simply guidelines, are recommendations on how to diagnose and treat a medical condition. They are written by medical experts with the support of patient\u2019s representatives, and are directed to doctors, but also nurses or any other health care professionals.   A guideline summarizes the current medical knowledge on a given disease, […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":3042,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-6053","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nEndorsed guidelines - ERN ITHACA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ern-ithaca.eu\/it\/guidelines\/endorsed-guidelines\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Endorsed guidelines - ERN ITHACA\" \/>\n<meta property=\"og:description\" content=\"Clinical practice guidelines (CPGs), or simply guidelines, are recommendations on how to diagnose and treat a medical condition. 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