{"id":1980,"date":"2022-05-30T14:26:55","date_gmt":"2022-05-30T12:26:55","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?post_type=resources&#038;p=1980"},"modified":"2022-07-08T10:05:11","modified_gmt":"2022-07-08T08:05:11","slug":"ern-ithaca-webinar-4-epags","status":"publish","type":"resources","link":"https:\/\/ern-ithaca.eu\/it\/education\/documentation-for-patients\/ern-ithaca-webinar-4-epags\/","title":{"rendered":"ERN-ITHACA Webinar #4 ePAGS"},"content":{"rendered":"<p class=\"wp-block-paragraph\"><strong>Marted\u00ec 21 giugno 2022, dalle 17:00 alle 18:30<\/strong><\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Webinar ERN-ITHACA #4: \u201cCome e perch\u00e9 partecipare al programma ITHACA in qualit\u00e0 di EPAG\u201d<\/strong><\/h2>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"ERN ITHACA WEBINAR#4 ePAGs\" width=\"640\" height=\"360\" src=\"https:\/\/www.youtube.com\/embed\/qo1m-ifnc7o?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Programma<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Benvenuto e presentazione, e per conoscerci meglio<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\"><li>Prof. Laurence Faivre (Ospedale di Digione, FR)<\/li><li>Dorica Dan (Presidente del Consiglio dei pazienti, RO)<\/li><li>Breve presentazione alla tavola rotonda \u201cShort pitch 1mn\u201d<strong><\/strong><\/li><\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Coinvolgimento dei pazienti e tutela dei loro diritti<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\"><li>Eurordis: una collaborazione \u201cvantaggiosa per tutti\u201d, la signora Dorica Dan (Presidente del Consiglio dei Pazienti, RO)<\/li><li>Un approccio incentrato sul paziente nell\u2019ambito di ITHACA e le risorse su cui poter contare, Anne Hugon (APHP Parigi, FR)<\/li><li>Didattica e formazione: un\u2019esperienza di gruppo di lavoro, Prof. Laurence Faivre (Ospedale di Digione, FR)&nbsp;<\/li><\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><em>Tempo dedicato alla discussione<\/em><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Come migliorare la mia partecipazione<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\"><li>Un ePAG, storia ed esperienze condivise, M. Ioel Detton (membro del Consiglio dei pazienti, FR)<\/li><li>Come posso partecipare? Ammi Andersson (membro del comitato dei pazienti, Svezia)<\/li><li>Cosa dovrei diffondere a livello locale per informare la nostra comunit\u00e0 di ricerca e sviluppo nell\u2019UE, Gabor Pogany (copresidente del Consiglio dei pazienti, HU)<\/li><\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><em>Tempo dedicato alla discussione<\/em><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Conclusione con gli intervenuti e il moderatore<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Dorica Dan (Presidente del Consiglio dei pazienti, RO)<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Prof. Laurence Faivre (Ospedale di Digione, FR)<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Registrati e accedi<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Se avete intenzione di partecipare, vi saremmo grati se poteste compilare questo modulo: <\/p>\n\n\n\n<figure class=\"wp-block-embed\"><div class=\"wp-block-embed__wrapper\">\nhttps:\/\/forms.office.com\/r\/EAb1Aq06EX\n<\/div><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Termine ultimo per l'iscrizione: 17 giugno<sup>th<\/sup><\/p>\n\n\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Dettagli della connessione:<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/u-paris.zoom.us\/j\/88017705353?pwd=QkdoK05KUHZGTURSM0QzV1RydG5tZz09\">https:\/\/u-paris.zoom.us\/j\/88017705353?pwd=QkdoK05KUHZGTURSM0QzV1RydG5tZz09<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">ID riunione 880 1770 5353<\/p>","protected":false},"excerpt":{"rendered":"<p>Tuesday June 21st -2022 from 17h -18h30 ERN-ITHACA Webinar #4: \u201cHow and why getting involved in ITHACA as an EPAG\u201d Program Welcome and Introduction, and get to know each other Pr Laurence Faivre (Dijon Hospital, FR) Mrs Dorica Dan (Chair Patient Council, RO) Round table short presentation \u201cShort pitch 1mn\u201d Patient engagement &amp; Patient Advocacy [&hellip;]<\/p>\n","protected":false},"featured_media":2014,"template":"","tags":[],"resources-type":[17,116],"class_list":["post-1980","resources","type-resources","status-publish","has-post-thumbnail","hentry","resources-type-webinar","resources-type-teaching-training-ressources"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.8 - 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