{"id":2154,"date":"2022-09-23T08:35:25","date_gmt":"2022-09-23T06:35:25","guid":{"rendered":"https:\/\/ern-ithaca.eu\/?post_type=resources&p=2154"},"modified":"2022-09-23T08:39:20","modified_gmt":"2022-09-23T06:39:20","slug":"ern-ithaca-webinar-joint-webinar-on-down-syndrome","status":"publish","type":"resources","link":"https:\/\/ern-ithaca.eu\/it\/education\/documentation-for-patients\/ern-ithaca-webinar-joint-webinar-on-down-syndrome\/","title":{"rendered":"ERN-ITHACA Webinar: Joint Webinar on Down Syndrome"},"content":{"rendered":"

Pr Damien Sanlaville (ERN ITHACA<\/strong><\/a>), Service de g\u00e9n\u00e9tique,<\/strong><\/a> H\u00f4pital Femme M\u00e8re Enfant, Lyon (FR), will provide an introduction to the topic<\/strong>.<\/p>\n\n\n\n

Following this, Dr Bruno Ranchin (ERN ERKNet<\/strong><\/a>), Pediatric Nephrology Department, H\u00f4pital Femme M\u00e8re Enfant<\/strong><\/a>, Lyon (FR), will give an overview of the nephrological aspects of the syndrome<\/strong>.<\/p>\n\n\n\n

Dr Giovanni Mosiello (ERN eUROGEN<\/strong><\/a> e WG leader of SBoD ERN ITHACA)<\/strong>, Pediatric Urologist, Ospedale Pediatrico Bambino Ges\u00f9<\/strong><\/a>, Rome (IT), will then discuss the urological viewpoin<\/strong>t.<\/p>\n\n\n\n

Finally, Dr Annalisa Scopinaro, President of\u00a0UNIAMO<\/strong><\/a>\u00a0(the Italian Federation of Rare Diseases and\u00a0ERN ITHACA ePags Advocate<\/strong>), will present\u00a0views from the patient organisations<\/strong>.<\/p>\n\n\n\n

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