Learning from the Pandemic to Improve Care: Perspectives and Recommendations from the RD Community

Of behalf of Anne Laure Aslanian (Eurordis) We are pleased to announce that Raquel Castro, Erwan Berjonneau and Sandra Courbier (Eurordis) have just published an editorial piece on the International Journal of Integrated Care entitled:

‘Learning from the Pandemic to Improve Care for Vulnerable Communities: The Perspectives and Recommendations from the Rare Disease Community’.

This editorial touches upon the situation of people living with a rare disease during the pandemic, recommendations for holistic integrated care, and rare diseases community’s perspectives on virtual care. figures and testimonials from Rare Barometer surveys have been used as well as the recommendations of Eurordis Holistic Care position paper.

You can find the article link here: https://www.ijic.org/articles/10.5334/ijic.5812/