Spina bifida inter-ERN workgroup

Pr Andrea Manunta (Rennes, France)

Pr Giovanni Mosiello (Rome, Italy)

Workpackage leads

Pr Andrea Manunta (Rennes, France)

Pr Giovanni Mosiello (Rome, Italy)

Key objectives

Spina Bifida is a congenital malformation syndrome that requires multidisciplinary expertise, that fits mainly within the remit of two ERNs (ITHACA and eUROGEN). The spina bifida workgroup has thus the particularity to be a cross-ERN WG which will work on producing care documents and guidelines for both ERNs.

Deliverables

D10.1: Issue an expert consensus statement for SB after reviewing existing national care structures and recommendations. Provide expert consensus statement on SB elaborated by cross-ERN WG to stakeholders through ITHACA website.