Workpackage leads

Pr Andrea Manunta (Rennes, France)

Pr Giovanni Mosiello (Rome, Italy)

Key objectives

Spina Bifida is a congenital malformation syndrome that requires multidisciplinary expertise, that fits mainly within the remit of two ERNs (ITHACA and eUROGEN). The spina bifida workgroup has thus the particularity to be a cross-ERN WG which will work on producing care documents and guidelines for both ERNs.

Deliverables

  • Expert consensus

    The main objective of this WG is to issue a transnational and trans-ERN initiative for an EU-wide recommendations for harmonization of clinical practices for SB patients. This expert consensus statement will be writen after reviewing existing national care structures and recommendations.