The Phelan-McDermid Syndrome Association is organizing this year the 2nd edition of the virtual solidarity race “RUN LIKE A HERO” GLOBAL RUNNING WEEK, from October 16 to 24.
Anywhere in the world, find a 1 or 5km route to run to foster medical research on the Phelan-McDermid Syndrome and to celebrate the International Phelan-McDermid Day, 22th October 2020!
To participate, register here : https://runlikeahero.com
We have the pleasure to announce the International Symposium Rare Diseases Day 2024 „We are the 300 million – we are all fighters!”, organized on the occasion of the Rare Disease Day by Regional Specialized Children’s Hospital in Olsztyn and the University of Warmia and Mazury in Olsztyn under auspices of Eurocordis (rarediseaseday.org). The meeting will […]
With an aim to enhance research in Paediatric Neurology, this meeting organised by the European Paedriatric Neurology Society (EPNS) brings together leaders in the field, active researchers and young fellows who are interested to join or to set up research projects. It is a forum for researchers in Paediatric Neurology, where they present their work, […]
Since its beginning in 2008, Rare Disease Day has been instrumental for the rare disease in building our advocacy at national level and connection with an international rare disease community that is global and diverse – but united in purpose and action, and that has supported our policy actions nationally and internationally. By sharing our […]
