Rare 2030 Final Conference & EURORDIS Black Pearl Awards 2021: Registration is now open!

We are delighted to announce that REGISTRATION for the Rare 2030 Final Policy Conference and the EURORDIS Black Pearl Awards 2021 is NOW OPEN!
These milestone events, online and FREE of charge, mark the occasion of Rare Disease Day 2021 and are designed to bring us together and shine a light on rare diseases in these challenging times.

As a valued member of the rare disease community, we hope you will be able to join us, from wherever you are, to celebrate outstanding achievements that are moving us forward and be part of the change we want to see over the next decade for people living with a rare disease.

The Rare 2030 Final Conference will take place online on 23 February 2021 (13:30 – 18:30 CET).

The event marks the occasion to present the Rare 2030 policy recommendations for a new policy framework in presence of high-level speakers, such as member of the European Parliament Kateřina Konečná (Czech Republic) and key opinion leader, geneticist and Rare 2030 Research Advisor Professor Milan Macek (Czech Republic).

With an EU Parliament presidency in 2022, the Czech Republic sends a strong message with their presence at this launch of the Rare 2030 recommendations, showing their commitment towards building a new framework for rare disease policy: Register here

On this occasion, EURORDIS will present the Rare 2030 policy recommendations during a plenary and leave it for open discussion in breakout sessions. These theme-specific group sessions will serve as a platform for exchanging knowledge and ideas on the practical use of the recommendations in advocacy and policy initiatives.

Any questions about the conference, please contact: rare2030@eurordis.org

Don’t miss the special 10-year anniversary edition of the EURORDIS Black Pearl Awards 2021 taking place fully online the day after the conference, on 24 February 2021, from 17:00 CET.

The event is a unique opportunity to unite individuals, organizations, and companies from all over Europe and beyond to recognize the outstanding achievements of the rare disease community. Together, we will discover the inspiring stories behind excellence in advocacy and social initiatives, providing a special moment to network with patient advocates, healthcare industry representatives, policy makers, healthcare professionals and more.