Share4rare End Event: Setting the path for next Generation Data Sharing on Rare Diseases

After four years of intense work, the Share4Rare consortium will share the findings and outputs of the Share4Rare project, setting the base for the next generation of data sharing in rare diseases. Next June 8, the Final Event of the Share4Rare project will be celebrated. 

The online webinar taking place on June 8 will share the learned lessons and will be joined by keynote speakers on the importance of the patient voice in research and developments in the European data system.

Registration & Agenda here: :