SBoD  – SPINA BIFIDA others Dysraphysms WorkGroup

Workgroup Chair and Co-chair

Chair: Pr Giovanni Mosiello
(Rome, Italy)

Co-chair: Jean-Marie Jouannic
(Paris, France)

Key Objectives

Spina Bifida is a congenital malformation syndrome that requires multidisciplinary expertise, that fits mainly within the remit of two ERNs (ITHACA and eUROGEN). The spina bifida workgroup has thus the particularity to be a cross-ERN WG which will work on producing care documents and guidelines for both ERNs.

The main objective of the workgroup is to issue an expert consensus statement for the disease, after reviewing existing national care structures and recommendations.

ITHACA PM Contact

Anne Hugon
Mail: anne.hugon@aphp.fr