ITHACA supports that initiative by helping to desseminate a call for participation in a studua study targeting patents of people suffering from neurodevelopmental disorders (autism, intellectual disability) and theimpact of eviction or confinement measures
Many projects are emerging in this difficult period of the COVID pandemic. ITHACA has been contacted by the University of Freiburg, Switzerland, in order to disseminate a call for participation in a study targeting parents of people suffering from neurodevelopmental disorders (autism, intellectual disability) and the impact of eviction or confinement measures (please follow this link).
The promoter of this research project is Prof. Andrea SAMSON of the Institute of Special Education – University of Freiburg. This study is supported by a consortium involving the University of Freiburg and the Imperial College of London, with a network of collaborators in different countries.
The innovative feature of this project is that it is based on an online, multilingual, and therefore European, website application and that it targets patients directly (through their parents). It is therefore the parents who provide the data.
ITHACA supports this initiative and we are willing to disseminate it among our members. If you wish to actively participate, please do not hesitate to share this call to patients’ associations/PAGs and to the patients you follow. There is obviously no obligation to follow this project: it may be in competition with national initiatives or other studies carried out by other teams with which you have already started collaborations.
If you are interested in participating, I encourage you to contact the study sponsor as soon as possible, so that they can register you in the list of collaborators.
The project already exists in several European languages. The information document for parents and associations can be downloaded below :
Do not hesitate to translate it into your language. The team is also interested in producing translations in other languages to extend the coverage of the study. Feel free to contact them!
Get here more information about the ERN Community actions