During the workshop you can participate at three breakout sessions.

The different topics offer the chance to make deep dive from multidisciplinary view, connect the gathered knowledge in the morning sessions and define the way forward in order to further optimise our research, education and organization of care & cure.

The two rounds are on Thursday 9 April from 14:30 till 15:45 and the second from 16:15 till 17:30.
The third round is on Friday, 10 April is from 14:15 till 15.30.

Breakout sessions on Thursday April 9 (14:30 – 17:30; 2 parallel rounds of 75 minutes)

Topics of the first round (14:30 -15:45)

1. Solving the undiagnosed: How recent insights translate into optimized workflows. Katrin Ounap, Helene Cederroth, Zeynep Tümer, Tjitske Kleefstra
2. Pain in people with intellectual disabilities: methodical and interdisciplinary collaboration (an educational session). Leendert Sneep & Nanda de Knegt
3. From Guideline to Practice – Implementing ERN ITHACA Guidelines (an educational session) Mirthe Klein Haneveld, Agnies van Eeghen  & co-workers cross Europe
4. From Principles to Practice: Interprofessional Collaboration in Rare Genetic Intellectual Disability Syndromes – A European Round Table. Mana Nasori, Kim Oostrom, Lotte Haverman, Sylvia Huisman 

Exchange break (15:45 – 16:15)

Topics of the second round (16:15 – 17:30)

1. Towards Precision Medicine for NDD. Geatan Lesca, Beatrice Desnous, Adreas Roos, Kasia Kotulska
2. From training skills to enabling interactions: A new paradigm in AAC for individuals with neurodevelopmental disorders and complex communication needs (an educational session). Gillian Townend, Maartje ten Hooven-Radstaake, Cindy Navis, Paulina Rutka, Elżbieta Dawidek
3. Building Patient Registries under the GDPR – The Good, the Bad and the Ugly (an educational session followed by a roundtable discussion). Christian Gebhard, David Townend
4. Neuropsychological insights: Cognition as a bridge between brain and behaviour in rare genetic syndromes? Anja Bos-Roubos, Jennifer Kramer, Carmen Oldenboom, Ellen Wingbermühle, Jos Egger
5. From Networks to Norms: Developing First European Recommendations and Care Principles for PIMD / Polyhandicap. Sylvia Huisman, Annette van der Putten, Marie-Christine Rousseau, Ilse H. Zaal-Schuller

Breakout sessions on Friday April 10 (14:30 – 15:15; parallel rounds of 75 minutes)

Topics of the third round (14:15 – 15:30)

1. Measuring what matters in genetic neurodevelopmental disorders: trials and care. Agnies van Eeghen & Ellen Elsman
2. Transition of Care for Adults with Intellectual Disabilities in Genetic Syndromes. Nikolinka Yordanova, Savi Shishkov, Laura de Graaff, Kasia Swieczkowska
3. Communication support for individuals with neurodevelopmental disorders and complex communication needs: sharing best practices (a round table discussion). Gillian Townend, Maartje ten Hooven-Radstaake, Cindy Navis, Paulina Rutka, Elżbieta Dawidek
4. Pain in people with intellectual disabilities: implementation and network formation (a round table discussion). Leendert Sneep & Nanda de Knegt

Curious what the discussions are about?
Under this button you will find more details of the different breakout sessions.

We will work in smaller groups and spaces are limited. Therefore, we ask you to indicate your top 2 topic preferences for rounds 1, 2, and 3. Based on these preferences, you will be assigned to a session that best matches your interests.

Please complete the form below, Please select your top two choice in each round!