In December 2025, HLM RARE 2025 brought together EU policymakers, ERNs, patient organisations, researchers and industry leaders in Brussels to advance a stronger European ecosystem for rare and complex diseases. A key milestone was the launch of the Declaration on a European Innovation and Care Ecosystem for Rare and Complex Diseases, a political commitment structured […]

The ITHACA Research Workgroup is pleased to announce its first 2026 workshop, dedicated to open collaborative calls, that Ill be held on May 12, from 2:00 to 5:00 PM. This session will provide an opportunity to present and discuss ongoing research projects and foster collaboration. Participants who wish to present their research (10–15 minutes) are […]

We are delighted to announce the Second Global and Sixth International Symposium Rare Disease Day 2026, held in recognition of Rare Disease Day and Sleep Awareness Month. The event is organized by the Regional Specialized Children’s Hospital in Olsztyn and the University of Warmia and Mazury in Olsztyn, under the auspices of EURORDIS (rarediseaseday.org) and […]