Legal Notice

This website is edited by ERN-ITHACA.


Hôpital universitaire Robert-Debré | APHP
48, boulevard Sérurier
75019 Paris


Conception and development of the website: Diplopixels – 26 rue des Sablons – 95360 Montmagny – Tél. +33 (0)1 34 16 70 58 –

This website is hosted by OVH – 2 rue Kellermann BP 80157 59053 ROUBAIX cedex 1 – France.


ERN-ITHACA is a European Reference Network (ERN) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit The content on this website represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.

The information provided on our website has been compiled to the best of our knowledge in order to give interested readers an initial overview of possible diseases and treatment options. They are intended solely for informational purposes and in no case replace personal advice, examination or diagnosis by authorized doctors.

Despite thorough checking, we do not hold liability for the content of external links or third party content. The owners or operators of external links are responsible for their content. This is also applicable to any links reached directly or indirectly via this website; ERN-ITHACA is not responsible for the content of a website reached using such links.


The content of these webpages is subject to French copyright law. It may only be reproduced, edited, translated, distributed or used beyond the scope of the copyright with written permission from the corresponding author or creator. Furthermore, this website may only be copied or downloaded for non-commercial or personal use. If this website contains content that was not created by the operator, the copyrights relating to this content have been respected. Third-party content is identified accordingly. However, if you believe there may be an infringement of copyright, please inform us and we will delete such content immediately.

You may be required to clear additional rights if a specific content depicts identifiable private individuals or includes third-party works. To use or reproduce content that is not owned by us, you may need to seek permission directly from the rightholders. Software or documents covered by industrial property rights, such as patents, trade marks, registered designs, logos and names, are not licensed to you.