CLINICAL GUIDELINES AND EXPERT CONSENSUS STATEMENTS
Pr Raoul Hennekam
Producing expert consensus statements is one of the main goals of ERNs. The objective can be reached by developing new recommendations, and/or by endorsing (after adaptation, if required) existing national consensus statements, following the recommendations of the ERN CMQS.
We will assess: the number of expert consensus statements (aka clinical practice guidelines) adopted for diseases within the scope of the ERN according to recognized evidence-based methodologies; the number of new expert consensus statements developed by the ERN for diseases within the scope of the ERN and for which no previous guidelines exist, according to recognized evidence-based methodology.
The main objectives of this workgroup are to evaluate existing national recommandations and to publish two new expert consensus statements.
ITHACA PM Contact
To see details of the last European meeting on Phelan-McDermid syndrome organised by the Guidelines Workgroup (Groningen, Netherlands, June 20 – 22, 2022), click here.