We are very pleased to announce that the ITHACA guideline “Transition from children’s to adults’ healthcare for youth with (genetic) intellectual disabilities” has been accepted for publication in the Journal of Intellectual Disability Research. Developed by the Transition of Care consortium convened by the ERN-ITHACA Guideline Workgroup, this guideline represents an important step toward improving […]

We are pleased to invite you to the upcoming Research Workshop, organized by Marco tartaglia and Zeynep Tumer of the ERN-ITHACA Research Workgroup. This workshop will present 12 open calls for collaboration from the ERN and will discuss how to strengthen interactions and identify possible synergies.  🗓️ Date & Time: 22 October, 14:00-17:30📍 Location: Online […]

We are excited to officially launch the registration and abstract submission for the third edition of the EuroNDD meeting, the first European workshop for a multidisciplinary view on rare genetic neurodevelopmental disorders! Building on the success of previous editions, next year’s meeting will feature research presentations, panel discussions, and interactive workshops designed to encourage knowledge-sharing […]