We are very pleased to announce that the ITHACA guideline “Transition from children’s to adults’ healthcare for youth with (genetic) intellectual disabilities” has been accepted for publication in the Journal of Intellectual Disability Research.
Developed by the Transition of Care consortium convened by the ERN-ITHACA Guideline Workgroup, this guideline represents an important step toward improving healthcare transitions for young patients with genetic intellectual disabilities across Europe.
Next steps will focus on dissemination, including a webinar and a lay version to ensure accessibility for families and patients. The guideline was also presented at the European Symposium on Transition in Paris last September, by ITHACA member Dr. Ioana Streață.
We sincerely thank and congratulate the workgroup members for their teamwork and commitment, which made the development of this guideline possible!