Closed

Targeted gene under study

DOWN SYNDROME CELL ADHESION MOLECULE; DSCAM (OMIM * 602523)

Abstract

DSCAM occupies a 1 Mb locus in the original Down syndrome critical region on 21q22 and encodes a neuronal cell adhesion molecule of importance for brain and eye development. We have seen DZ twins both homozygous for a DSCAM nonsense variant. The twins’ phenotype overlapped with two previously published individuals with biallelic DSCAM loss-of-function (LOF) variants. In an effort to establish whether DSCAM loss leads to a novel, syndromic neurodevelopmental disorder, we call for further cases with biallelic, LOF DSCAM variants.

Coordinating clinicians/researchers

Sofia Douzgou Houge – sofia.douzgou.houge@helse-bergen.no

Institution     

Department of Medical Genetics, Haukeland University Hospital, Bergen, Norway

Specific requirements beyond clinical data and genotype data sharing:

  • Re-analysis of DNA samples: No
  • Resampling of patients: No
  • Linked to a translational/basic research project: No