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Home > Our Research Activities > List Of Publications > Navigating care for rare: Clinical practice guidelines for rare genetic neurodevelopmental disorders

Navigating care for rare: Clinical practice guidelines for rare genetic neurodevelopmental disorders

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Methodological rigor of rare disease guidelines in Europe: a scoping review and critical appraisal

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ERN ITHACA is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/ health/ern

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