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Targeted gene/syndrome under study:

OMIM # 617140 / SYNDROME ZTTKS

Abstract

We are looking for observations of patients carrying deletion, nonsense or frameshift variants of the SON gene, responsible for ZTTK syndrome, in order to better describe epileptic and/or migraine phenotypes, with if possible EEG and imaging datas.

Coordinating clinicians

Roseline Caumes – roseline.caumes@chu-lille.fr

Institution

Service de génétique clinique, CHU Lille, France

Specific requirements beyond clinical data and genotype data sharing:

1- Re-analysis of DNA samples: No

2- Resampling of patients: No

3- Linked to a translational/basic research project: No