Published on February 6, 2026

Last February 4, all the ERN ITHACA patient associations came togeter to elect the 2026-2027 ITHACA Steering Committee.

Thank you and congratulations to Dorica, Tanja, Sue and Daniele on their re-election, and a warm welcome to Zhana, Sergios and Rui as they join the Steering Committee! We look forward to the work ahead and to achieving great things together.

The ITHACA Steering Committee is the governing body elected by our ePAG community. It is part and parcel of ERN-ITHACA’s governance and thus participates in each Workgroup or transversal activities and is represented in both the Executive Committee and the Board. Through this organisation, ITHACA aims to maintain a high degree of cooperation between ePAGs and other ERN stakeholders at all levels of decision making and to ensure that all the ERN activities include patients and their families’ perspectives.