The ExCom will facilitate dissemination of information from EU to the HCP network, updates about Workpackage progress and communication between workgroups. The members of the ExCom are:
- All Members of the Coordination Team
- Chair and co-chair of all Workgroups
- Chair and co-chair of the Patient Council.
The Executive Committee has 6 bimestrial meetings per year: 4 WebEx Meetings (every 2 months), and 2 face-to-face Meetings. The agenda and minutes are prepared by the Project Manager. In case of voting, each member has a vote. In the event of a tie vote, the ERN coordinator’s vote shall prevail.
Board of Members
The Board of ITHACA consists of the local Coordinators of full member HCPs, the local Coordinators of affiliated members and affiliated hubs, the members of the ExCom that are not local coordinators, and 5 representatives of the Patient Council (including the 2 who are members of the ExCom). In case of a vote, all members of the ExCom, all representatives of full members and the 5 representatives of the Patient Council have a vote.