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  • About Us
    • Who We Are
    • What are ERNs ?
    • Our EU expert centers
    • Our Patient Associations
    • Our EU partnerships
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    • Neurodevelopmental disorders (WG5)
    • Spina Bifida & other Dysraphisms (WG13)
    • Fetal medicine and pathology (WG6)
    • Healthcare & CPMS (WG5)
    • Guidelines & consensus (WG11)

    • Teaching & Training (WG8)
    • APOGeE (WG9)
    • European Certificate (WG10)

    • Research & innovation (WG12)
    • Registries (WG7)
  • Our Research Activities
    • ILIAD RD register
    • Calls for collaboration
    • Publications
    • ITHACA Research Meeting
  • Guidelines
    • Methodology
    • ERN ITHACA Guidelines
    • Endorsed guidelines
    • Patient Journeys
  • Education
    • Online Genetics Course APOGeE
    • Survival guide to genetics
    • ESHG Precision Genomic Medicine Course

    • MOOC “Diagnosis Rare Diseases”
    • MOOC “bioinformatics”

    • Orphanet Updates
    • SysNDD Database

    • Training exchanges

    • Educational videos
  • News & Events
    • Webinars
    • EuroDysmorpho 2025
    • EuroNDD 2026
    • NSEuronet Meeting
    • ERN-ITHACA Winter School

    • Events
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  • EJP RD

    EJP RD-ERN Research Training Workshop Call

    The European Joint Programme on Rare Diseases has launch the ERN Research Training Workshops funding opportunity. The goal of the workshops is to train researchers and clinicians affiliated to ERN- Full Members or – Affiliated Partners in relevant topics on research in rare diseases. Training themes may include innovative research methodologies, diagnostic research methodologies, interdisciplinary treatment approaches, […]

    + Read article
    September 6, 2021
  • New MOOC session : “Diagnosing Rares Diseases: from the Clinic to the Research...

    The new MOOC session (Massive Open Online Course) “Diagnosing Rare Diseases: from the Clinic to Research and back” co-developed by the EJP RD (European Joint Programme on Rare Diseases), the ERN Ithaca, ERN Genturis and the Rare Diseases Foundation, will be held on October 4, 2021. Registration is free of charge and available following this link. The course’s first session has attracted nearly 1800 participants […]

    + Read article
    September 2, 2021

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