Europe is made up of many different populations both indigenous to Europe and those that migrated in over the centuries. Differing barriers in healthcare access means that rare and ultra rare disorders may cluster within some of these populations. Some have unique cultural norms that may differ from the general population or may face more difficulty in finding their way to healthcare professionals. It is important for clinicians working with these populations to develop an understanding of the unique issues faced by populations within their locality. How do we reach these communities, and how can the EU help reduce access barriers? This webinar answers these questions by exploring the EU context and the unique needs of these populations.
Chaired by Pr Sally Ann Lynch.
Welcome and Introduction
- Jukka Moilanen or Johanna Uusimaa, Oulu University Hospital, Dept of Clinical Genetics and Rare Diseases Unit, Oulu Finland.
Social determinants of health in European policy
- Tomas de Jong, European Public Health Alliance (EPHA), Belgium
The Finnish story : Founder effects & genetic isolation-
- Outi Kuismin, Oulu University Hospital, Dept of Clinical Genetics and Rare Diseases Unit, Oulu Finland.
The Romanian Roma
- Ioana Streata, Hospital Center, Craiova Romania.
The Irish Travellers
- Sally Ann Lynch, CHI Crumlin & Temple Street, Dublin, Rep of Ireland]
Discussion time
Conclusion with speakers and moderator
Participation on registration: https://events.teams.microsoft.com/event/44babed3-c0aa-4d59-a769-b8814d3574fb@2461c129-d44f-406d-a778-d1a3c4c1527c