Tuberous Sclerosis Complex (TSC) is a multi-system genetic disorder with various TSC-Associated Neuropsychiatric Disorders (TAND) that significantly impact the mental health and wellbeing of individuals with TSC and their caregivers. TAND represents the number one concern to families worldwide, yet is highly under-identified and under-treated. In this webinar, we introduced the concept of TAND and proposed strategies for management.
Programme
Bienvenue et présentation
- Speaker : Anna Jansen
- From : Antwerp University Hospital, Antwerp, Belgium
The journey with TSC, a family perspective
- Speaker : Mary Vasseghi
- From : TSC Ireland and Trinity College Dublin
TSC-Associated Neuropsychiatric Disorders and the TANDem project
- Speaker : Anna Jansen
- From : Antwerp University Hospital
Focus on caregiver wellbeing
- Speaker : Liezl Schlebush
- From : University of Cape Town, South-Africa
Vous pouvez consulter la présentation PowerPoint du webinaire ICI.