Upcoming webinars

2026

24 November: Kabuki Syndrome
15 December: European initiatives developing organizational frameworks for therapies based on antisense oligonucleotides (ASO)

12 January: Comparing RGCS Implementation Across Europe: Insights from Three Countries
19 January: First international guidelines for the diagnosis and management in Rubinstein-Taybi syndrome
26 January: Learnings from Natural history studies in Angelman Syndrome
23 February: Innovation And Flexibility In Education: Tailoring Learning To Children Living With RD
16 March: Clinical Utility or Long-Read Sequencing in RD & Advanced Bioinformatics for Long-Read Sequencing in RD
20 April: Rare chronic diseases – How can psychology help