Healthcare & CPMS (WG5)

Workgroup chair

Dr Sofia Douzgou
(Bergen, Norway)

What is the CPMS?

This Workpackage will aim to improve access to high specialty, direct healthcare for rare malformation and intellectual disability syndromes through the development of the Clinical Patient Management System (CPMS), an innovative software that allows virtual discussions over challenging clinical cases between European specialists, in order to help the diagnostic or treatment of these cases. To meet its broad objectives, ITHACA aims to capitalize on the network’s composition and range of expertise to set up cross-border knowledge sharing and secure multidisciplinary patient consultations and care.

CPMS is a secure, GDPR (General Data Protection Regulation)-compliant clinical exchange platform of the ERNs. CPMS is web-based and cross-platform accessible for end users. It can be used as a repository of cases, helping to build a collection of pseudonymised patient data for further clinical/epidemiological studies.

Efficient use of CPMS will be evaluated by the number of patients entered into CPMS and reviewed by an expert panel of the ERN, and by the waiting time for multidisciplinary clinical advice (i.e. panel closure) for non-urgent cases.

CPMS 2.0: A new simplified version for your complex cases

A new version of the CPMS, called CPMS 2.0, has been developed by ERNs and the European Commission to enhance the tool’s functionality and user experience. With this new version, members can share expertise more smoothly and precisely. New features include:

Easy case submission with simplified data entry;
Integrated chat for improved member communication;
Enhanced video conferencing for high-quality expert consultations.

Existing users will seamlessly transition to CPMS 2.0 without needing to re-register.

CPMS 2.0 is also accessible via a dedicated mobile application for convenient use on the go (see below)

Know that by joining CPMS 2.0, you participate and your ERN can help Ukrainian healthcare providers to seek advice on their rare or complex disease patients

How to use CPMS 2.0

EU Login portal

The CPMS is accessible after you authenticate to your EU Login Account. You can access your EU account either from your computer or your mobile phone.

To ensure a smooth transition to CPMS 2.0, please follow these guidelines:

Enrol and discuss all new patients, including those from Ukrainian hospitals, exclusively in CPMS 2.0 (https://cpms2.ern-net.eu).

If needed, continue existing patient discussions in the current CPMS (which remains fully functional until the migration of existing patients) and close the panels upon completion of the discussions.