Workgroup chair

Prof. Dr. Adela Chirita-Emandi
(Timisoara, Romania)
This Workpackage aims to improve access to high specialty, direct healthcare for rare malformation and intellectual disability syndromes through the development of the Clinical Patient Management System (CPMS),
The CPMS is an innovative software that allows virtual discussions over challenging clinical cases between European specialists, in order to help the diagnostic or treatment of these cases. It can also be used as a repository of cases, helping to build a collection of pseudonymised patient data for further clinical/epidemiological studies.
CPMS 2.0, the current version of the plaform, is a secure, GDPR-compliant clinical exchange platform developped for ERNs under the umbrella of the EU Commission DG Sante.
Check the platform privacy statement to know more about the processing and protection of personal data on the plaform.
To develop the use of the plaform, ITHACA aims to capitalize on the network’s composition and range of expertise to set up cross-border knowledge sharing and secure multidisciplinary patient consultations and care. Efficient use of CPMS will be evaluated by the number of patients entered into CPMS and reviewed by an expert panel of the ERN, and by the waiting time for multidisciplinary clinical advice (i.e. panel closure) for non-urgent cases.
CPMS 2.0
A new version of the CPMS, called CPMS 2.0, has been developed by ERNs and the European Commission to enhance the tool’s functionality and user experience. With this new version, members can share expertise more smoothly and precisely. New features include:
- Easy case submission with simplified data entry;
- Integrated chat for improved member communication;
- Enhanced video conferencing for high-quality expert consultations.
Know that by joining CPMS 2.0, you can help Ukrainian healthcare providers to seek advice on their rare or complex disease patients
How to use CPMS 2.0
Connect to your EU Login portal
The CPMS is accessible after you authenticate to your EU Login Account. You can access your EU account either from your computer or your mobile phone.
Connect to the CPMS 2.0
Access CPMS 2.0 on your computer: https://cpms2.ern-net.eu/
You can also connect to the plaform on your mobile phone. Apps of CPMS 2.0 are now officially available to the general public on both Android and Apple stores!
You can now enrol and discuss all new patients, including those from Ukrainian hospitals.
CPMS 2.0 online trainings
Below is the list of the currently scheduled trainings for CPMS 2.0 clinician:
- Tuesday 17 February, 10:00-11:00 CET – Join the meeting
- Tuesday 17 march, 10:00-11:00 CET- Join the meeting
Documentation for CPMS 2.0
Video ressources
Text ressources
CPMS 2.0 Consent forms
