Workgroup chairs
Prof. Dr. Adela Chirita-Emandi
(Timisoara, Romania)
Dr. Sofia Douzgou Houge
(Bergen, Norway)
This Workpackage aims to improve access to high specialty, direct healthcare for rare malformation and intellectual disability syndromes through the development of the Clinical Patient Management System (CPMS),
CPMS 2.0 (https://cpms2.ern-net.eu/) is a secure platform for online patient case discussions between European clinicians.
Introduction and user guides: link
Having contributed to the development of CPMS 2.0, this workgroup now focuses on promoting its widespread use. Apart from providing users with technical support, we organise regular ITHACA clinics to discuss challenging cases on CPMS 2.0.
Sign up for the next ITHACA clinic on 6 March: https://forms.office.com/e/k5KDkPxfGR
CPMS 2.0 online trainings
Below is the list of the currently scheduled trainings for CPMS 2.0 clinician:
Documentation for CPMS 2.0
Video ressources
Text ressources
CPMS 2.0 Consent forms