CLINICAL GUIDELINES AND EXPERT CONSENSUS STATEMENTS
Workgroup Chairs
![](https://ern-ithaca.eu/wp-content/uploads/2023/05/Agnies_van_Eeghen_Photo.png)
Dr Agnies van Eeghen
(Amsterdam)
![](https://ern-ithaca.eu/wp-content/uploads/2023/05/Szakszon-photo2022-400x600-1.jpg)
Dr. Katalin Szakszon
(Debrecen)
Key Objectives
Producing expert consensus statements is one of the main goals of ERNs. The objective can be reached by developing new recommendations, and/or by endorsing (after adaptation, if required) existing national consensus statements, following the recommendations of the ERN CMQS.
We will assess: the number of expert consensus statements (aka clinical practice guidelines) adopted for diseases within the scope of the ERN according to recognized evidence-based methodologies; the number of new expert consensus statements developed by the ERN for diseases within the scope of the ERN and for which no previous guidelines exist, according to recognized evidence-based methodology.
The main objectives of this workgroup are to evaluate existing national recommandations and to publish two new expert consensus statements.
ITHACA PM Contact
Anne Hugon
Mail: anne.hugon@aphp.fr
To see details of the last European meeting on Phelan-McDermid syndrome organised by the Guidelines Workgroup (Groningen, Netherlands, June 20 – 22, 2022), click here.