News
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SOFFOET “Best Of Meeting” Program
Please find here the program of the « SOFFOET Best of meeting» that will be held on next Friday, October the 15th, from 9.30 am to 17.30pm, Paris time. It will be online via GoToMeeting. The link for connexion is included in the program. Soffoet is looking forward to sharing these trickiest and interesting cases of fetal and placental […]
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EURORDIS
For action: Final week EURORDIS Black Pearl Awards Nominations
The Eurordis CALL FOR NOMINATIONS for the next Black Pearl Awards, which is running since May, will be closing in a week, on Friday, 10th September. The EURORDIS Black Pearl Awards celebrate the inspirational qualities of people living with a rare disease along with those who go that extra mile to make a difference in their lives. The […]
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EJP RD
EJP RD-ERN Research Training Workshop Call
The European Joint Programme on Rare Diseases has launch the ERN Research Training Workshops funding opportunity. The goal of the workshops is to train researchers and clinicians affiliated to ERN- Full Members or – Affiliated Partners in relevant topics on research in rare diseases. Training themes may include innovative research methodologies, diagnostic research methodologies, interdisciplinary treatment approaches, […]
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New MOOC session : “Diagnosing Rares Diseases: from the Clinic to the Research...
The new MOOC session (Massive Open Online Course) “Diagnosing Rare Diseases: from the Clinic to Research and back” co-developed by the EJP RD (European Joint Programme on Rare Diseases), the ERN Ithaca, ERN Genturis and the Rare Diseases Foundation, will be held on October 4, 2021. Registration is free of charge and available following this link. The course’s first session has attracted nearly 1800 participants […]