Tuberous Sclerosis Complex (TSC) is a multi-system genetic disorder with various TSC-Associated Neuropsychiatric Disorders (TAND) that significantly impact the mental health and wellbeing of individuals with TSC and their caregivers. TAND represents the number one concern to families worldwide, yet is highly under-identified and under-treated. In this webinar, we will introduce the concept of TAND and propose strategies for management.
Date: Tuesday 20 May, 2025, 17:00 – 18:30 (CET)
Programma
Benvenuto e introduzione
- Speaker : Anna Jansen
- From : Antwerp University Hospital, Antwerp, Belgium
The journey with TSC, a family perspective
- Speaker : Mary Vasseghi
- From : TSC Ireland and Trinity College Dublin
TSC-Associated Neuropsychiatric Disorders and the TANDem project
- Speaker : Anna Jansen
- From : Antwerp University Hospital
Focus on caregiver wellbeing
- Speaker : Liezl Schlebush
- From : University of Cape Town, South-Africa
Tempo dedicato alla discussione
Conclusione con gli intervenuti e il moderatore
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